Long Covid Podcast

Send us a Text Message.Episode 130 of the Long Covid Podcast is a chat with Dr Marco Leitzke who has been exploring the use of Nicotine Patches to help with Long Covid. We discuss what Nicotine is, why it can help and how this could be something incredibly useful.Links to Dr Marco's work & social media etc: https://linktr.ee/marcoleitzkeA blog written on "Health Rising" https://www.healthrising.org/blog/2023/12/07/nicotine-patch-long-covid-chronic-fatigue-fibromyalgia/ For more informatio...

Send us a Text Message.Episode 129 of the Long Covid Podcast is a chat with Lily Spechler, a registered dietitian who is working with people with Long Covid following her own experience with it. We chat through some of the trends she is seeing and some pointers for people to follow.Lily's Instagram: https://www.instagram.com/longcoviddietitian/The Energy Expansion Project: https://www.longcoviddietitian.com/ with some resources and a link to the application. For more information about Long Co...

Send us a Text Message.Episode 128 of the Long Covid Podcast is a chat with Nigel McCracken, COO of Virax Biolabs & Sean Knight, Clinical research fellow at the University of Manchester. Nigel and Sean are working together in collaboration on a study to dive deeper into T-Cell exhaustion in people with Long Covid.We take a deep dive into T-Cells, immunology and the quest for a biomarker!Virax Biolabs Long Covid research at Manchester For more information about Long Covid Breathing, their ...

Send us a Text Message.Episode 127 of the Long Covid Podcast is a chat with Rachael Heath-Porsz about her recovery from Long Covid! We chat through her experience - the things that helped, the things that didn't and what life looks like now. We also chat a bit about what Rachael is doing now - helping people with Long Covid to return to movement in a safe & supported way.Rachael's Instagram: https://www.instagram.com/rebound.athletic/Rachael's website: www.rebound-athletic.com For more in...

Send us a Text Message.Episode 126 of the Long Covid Podcast is a chat with Joshua Roman - Cellist, Composer & Curator, as well as Longhauler. We chat through some of the things that he experienced, learned and some of the incredibly inspiring work he is now doing to help others with Long Covid as well as heal himself.Links:Joshua Roman Website"Immunity" ProjectYour Brain on Art by Susan Magsamen & Ivy Ross NBS News Segment featuring Joshua - A blood test for long Covid is possi...

Send us a Text Message.Episode 125 of the Long Covid Podcast is a chat with Peter Burt. Peter has found himself "washed up on a desert island" after floating around in the sea of Long Covid for a couple of years. We talk through a lot of fascinasting stuff, the idea of "not feeling like a man" and how difficult but extremely important it is to ask for help - and then receive it!This is such an honest conversation - thankyou Peter for being brave and getting in touch, and we hope that this wil...

Send us a Text Message.Episode 124 of the Long Covid Podcast is a chat with Dr Elizabeth So about East Asian Medicine. We take a deep dive into what EAM is and some of the background to it, as well as how it can help with conditions such as Long Covid - and why! This was such a fascinating discussion - we could have carried on for hours - and one of the biggest takeaways for me was the need to work together. That, and I've basically committed myself to trying Acupuncture now...Elizabeth'...

Send us a Text Message.Episode 123 of the Long Covid Podcast falls on Long Covid Awareness Day, and also 4 years since I first became unwell. This is my reflections on the last 4 years - Long Covid & beyond. I also did a video for youtube which might be of interest hereEpisode 94 - my recovery story Support the Show.~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, ple...

Send us a Text Message.Episode 122 of the Long Covid Podcast welcomes back the wonderful Professor Louise Cummings to talk about her follow-up study into the cognitive & linguistic difficulties in adults with Long Covid and also looking at employment outcomes for those people. This is a hugely enlightening discussion, covering a lot of information - I hope you enjoy it as much as I did.My previous episode with Louise: Episode 18 with more details about Louise's original study Testimonials...

Send us a Text Message.Episode 121 of the Long Covid Podcast is a chat with Fatigue Coach Pamela Rose about those difficult conversations that can come up time and time again. We chat through some of her experiences and how they have led her to be able to work with & help people. And we also dive into those difficult conversations - which ones tend to come up most often, and how can we best handle them?Follow Pamela on Facebook & Instagram Website: https://www.pamelarose.co.ukCou...

Send us a Text Message.Episode 120 of the Long Covid Podcast welcomes the wonderful Dr Mark Faghy back to the podcast for a long awaited catch-up on all the research he's been involved in at Derby Uni, but also info on the first anti-viral Long Covid clinical trial - in the UK, if not the world!https://www.derby.ac.uk/research/showcase/long-covid-research/Episode #103 with Amy Proal on Viral PersistenceEpisode #36 with Mark when we first spoke, back in early 2022. For more information about L...

Send us a Text Message.Episode 119 of the Long Covid Podcast is a fascinating discussion with Ewa Beldzik and Daniel Gomez about the Long Covid study they are doing involving MRI and mapping the brain during tasks. We dive a load into the study and it's absolutely amazing! A link to enroll in the study And their email for any questions: MGHLCOVID@MGB.ORG For more information about Long Covid Breathing, their courses, workshops & other shorter sessions, please check out this link(musi...

Send us a Text Message.Episode 118 of the Long Covid Podcast is a chat with Dr Sarah Myhill about her experiences of working with people with ME/CFS and now Long Covid. We chat through her treatment protocol and some ideas to help that are practical & cheap - an important factor!Dr Myhill's websiteBooks:- chronic fatigue book- paleoketogenic diet- ecological medicene - Underactive thyroid bookDr Rachel Brown MetPsy For more information about Long Covid Breathing, their courses, workshops ...

Send us a Text Message.Episode 117 of the Long Covid Podcast is a chat with the wonderful Leela O'Brien about her experiences with Long Covid and what she has learned about herself in the process. A big takeaway from this is the "what can we do" and that we don't need to wait to be healed before trying to find ways to enjoy life, even if they are not what we wanted or expected.Personal website & info about her coaching business: https://www.leelaobrien.comLeela's wellness & outdoor ad...

Send us a Text Message.Episode 116 of the Long Covid Podcast is a chat with the fabulous Dr Claire Taylor. We take a dive into her previous experience which led her to Long Covid, and also to some of the common trends & useful strategies she is seeing with her patients.Claire Taylor TwitterClaire Taylor WebsiteClaire Taylor Instagram For more information about Long Covid Breathing, their courses, workshops & other shorter sessions, please check out this link(music - Brock Hewitt, Rule...

Send us a Text Message.Episode 115 of the Long Covid Podcast welcomes back CEO of Dysautonomia International Lauren Stiles to chat about research into Dysautonomia, and how this is relevant to Long Covid.This is a fascinating discussion, which dives back into research pre-Covid that is (or should be) informing research happening now. We also take a look at trials and studies happening now - and why they are important.Dysautonomia International Website: http://www.DysautonomiaInternational.org...

Send us a Text Message.Episode 114 of the Long Covid Podcast is a chat with Sarah about her recovery from Long Covid. Sarah is a yoga teacher who is now teaching yoga classes to help people with Long Covid, as well as running her own podcast focused on recovery stories. We chat through Sarah's experiences, what helped her to recover and what life looks like now.http://www.LearnitLive.com/longhaulyogi - regular Yoga for Long Covid Zoom classes onlineLonghaulyogi.subkit.com - Yoga for Long...

Send us a Text Message.Episode 113 of the Long Covid Podcast is an incredible showcase of creativity inspired by Long Covid. These wonderful talented people have shared so many different varieties of creativity and it was such a joy to witness. Links to all the participants are below - please do check them out - and all the visual elements - paintings, collages, crochet & nail art are on the website creativity page - check this out because it's amazing! Not only does it have this years' p...

Send us a Text Message.Episode 112 of the Long Covid Podcast is my 2023 reflections. A lot of look back on, be grateful for and certainly a lot that I've noticed - about myself and the world! Of course this isn't medical advice - just my own observations. Links mentioned: Episode 94 - my recovery storyLast year's episode - 2022 ReflectionsMore info about Breathing for Long CovidOur Jan courses (info & sign up) - or email longcovidbreathing@gmail.com Support the Show.~~~~~~~~~~~~...

Send us a Text Message.Episode 111 of the Long Covid Podcast is a chat with Sophie Reynolds who has recovered from ME/CFS and is now using her experiences to help people through Pilates, which was one of the things that helped her so much. We chat through her experiences as well as what helped, and what she has learned from the experience to take forward into her life now.Sophie's Instagram profilehttps://www.instagram.com/sophiereynoldspilates/My free consultation form:https://docs.goo...

Send us a Text Message.Episode 110 of the Long Covid Podcast is a chat with Lisa McCorkell, Gina Assaf & Hannah Davis, co-leads & co-founders of the Patient-Led Research Collaborative. We chat about how Long Covid & the Body Politic Slack community brought them all together, and how the organisation has progressed and flourished from there.Website: patientledresearch.com Nature Review: https://www.nature.com/articles/s41579-022-00846-2- original body politic survey: https://patien...

Send us a Text Message.Episode 109 of the Long Covid podcast is a chat with Julie Black about her recovery from Long Covid. We speak through her illness, what she found that helped as well as other observations she has.As with all recovery stories - this is just one person's experience. No two recovery stories are likely to be carbon copies of each other.**transcript now updated - if it's not showing for you, you may need to refresh or re-download**Rachel Witfields recovery blog and resources...

Send us a Text Message.Episode 108 of the Long Covid Podcast is a chat with Cardiologists and researchers, Vassilios Vassilou & Vicky Tsampasian. We discuss cardiac-related things they have seen in Long Covid patients as well as their research into risk factors of Long Covid and why this is important.https://journals.plos.org/globalpublichealth/article?id=10.1371/journal.pgph.0001188https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2777978https://link.springer.com/article/10.10...

Send us a Text Message.Episode 107 of the Long Covid Podcast is a chat with the fabulous Raelan Agle who has recovered from Chronic Fatigue Syndrome and is passionate about sharing both her own recovery story and those of others. We chat through her own recovery and some of the themes and highlights of people she has spoken to on her channel. This is so full of hope and excitement and was a genuine joy to record.Raelan's YouTube Raelan's InstagramRaelan's book - Finding Freedom: Escaping...

Send us a Text Message.Episode 106 of the Long Covid Podcast is a chat with Dr Taylor Krick from the Washington Wellness Centre and also the host of the "Autoimmune Doc Podcast"We chat through his experiences with patients with autoimmunity both before Covid and since Long Covid came along, as well as some of the patterns he is seeing.www.autoimmunedocpodcast.com @autoimmunedoc on instagram, I think Facebook is the same For more information about Long Covid Breathing, their courses...

Send us a Text Message.Episode 105 of the Long Covid Podcast is a chat with Dr Calum Carson, Senior Research Associate at Lancaster University about the Inclusive Remote and Hybrid Working Study which he is involved in.Participate in the studyProject websitePrevious study The changing workplace: Enabling disability-inclusive hybrid working - Lancaster University For more information about Long Covid Breathing, their courses, workshops & other shorter sessions, please check out this link(m...

Send us a Text Message.Episode 104 of the Long Covid Podcast is a chat with artist, Alison Larkman, about her project "I would be here if I could" which is currently in progress. We chat about the inspiration behind the project, and Alison's experiences with ME which really resonate throughout the project.More information, or participate!www.IWouldbeHereIfICould.com For more information about Long Covid Breathing, their courses, workshops & other shorter sessions, please check out this li...

Send us a Text Message.Episode 103 of the Long Covid Podcast is a chat with the fabulous Dr Amy Proal, a microbiologist researching viral persistence in Long Covid. We chat through what brought her to this research as well as taking a bit of a deep dive into the topic.Review Paper: https://www.nature.com/articles/s41590-023-01601-2#MOESM1PolyBio Research Foundation recent paper on SARS-CoV-2 reservoir in LongCovid/PASC For more information about Long Covid Breathing, their courses, workshops ...

Send us a Text Message.Episode 102 of the Long Covid Podcast is a chat with Dan Neuffer about his experiences with ME/CFS and how that led him to create the ANS Rewire program. We discuss Dan's hypothesis for post viral fatigue syndrome, and how this relates to Long Covid recovery.Get Dan's free e-bookRequest the free intro lessons for ANS Rewire CFS Unravelled - YouTube CFS Unravelled Instagram For more information about Long Covid Breathing, their courses, workshops & other sh...

Send us a Text Message.Episode 101 of the Long Covid Podcast welcomes back Dr Sally Riggs for a chat about Polyvagal theory and how this relates to Long Covid. We talk through some Polyvagal strategies that can be tried as well as Sally's personal experience.Episode #23 - Sally's previous episodeMore info on doing SSP with SallyUnyte ILS SSP practitioners"how to find an SSP practitioner" YoutubeSally's Website Sally's Facebook group Sally's E-course Sally's YouTube For more information about ...

Send us a Text Message.Episode 100 (yes - 100!!) of the Long Covid Podcast is a chat with the fabulous Michelle Irving, a coach working with people with chronic illness to help them to feel empowered. We talk about her own experiences with chronic conditions and how she is using them to help guide others.This is a wonderful, inspiring discussion, always focusing on what we can do, rather than what we can't. Emotional empowerment mapSarah Marie Ramey (the Lady's Mysterious Illness)Michelle's w...

Send us a Text Message.Episode 99 of the Long Covid Podcast is a chat with the fabulous Viola Sampson, microbiome analyst and certified health coach. Viola has recovered from ME after a long illness and is passionate about helping people with fatigue conditions through her knowledge of the microbiome.This is a fantastic dive into what the microbiome is, and how we might be able to improve our own.Instagram @violasampson_microbiomePodcast with more detail on microbiome changes can be found at:...

Send us a Text Message.Episode 98 of the Long Covid Podcast is a chat with Charlotte Hammond who is sharing her recovery story! We chat through her initial illness, symptoms, what she found that helped as well as more useful stuff for those still suffering.Charity providing counselling (UK)Dr Sinclair For more information about Long Covid Breathing, their courses, workshops & other shorter sessions, please check out this link(music - Brock Hewitt, Rule of Life) Support the Show.~~~~~~~~~...

Send us a Text Message.Episode 97 of the Long Covid Podcast is a chat with Dr Harlan Krumholz, Cardiologist, leading research scientist at Yale and also the co-lead of the Paxlovid Trial. We chat around the research into Long Covid at Yale - the Listen Study as well as the Paxlovid Trial which are collaborations with Akiko Iwasaki, as well as the way that these studies are being run - in a decentralised way.More info & sign up for the Listen StudyMore info & how to sign up for the Pax...

Send us a Text Message.Episode 96 of the Long Covid Podcast is a chat with Dr Masha Makeeva, Canadian Board-Certified Naturopathic Doctor, educator, and motivational speaker, but also has experience of Long Covid and other chronic conditions. We chat through her own experiences and how her knowledge as a doctor (as well as previous illness) has helped her to move towards recovery. Youtube channel Instagram @dr_masha_makeeva website - www.drmasha.comThe Plant ParadoxMS HBOT link (for UK)...

Send us a Text Message.Episode 95 of the Long Covid Podcast is a chat with the fabulous Élaina Gauthier-Mamaril, Interdisciplinary Research Fellow at the Centre for Biomedicine, Self and Society at the University of Edingurgh. She has experience of disability through ME/CFS and is also presenting part of her research at the Edinburgh Fringe this summer as a show - "Long Covid, Zombies & Crip Prophecies"This is such an interesting discussion about disability in general as well as Élaina's ...

Send us a Text Message.Episode 94 of the Long Covid Podcast is a bit special - here I am handing over my hosting duties to my partner, Malky, so he can interview me about my recovery. Yes - my recovery - from Long Covid.Although it's impossible to cover everything (I've already thought of loads of things I wanted to say but forgot), hopefully we got most of the important stuff.As always - if you have questions - please do get in touch, as there's always the possibility of a follow-up (with an...

Send us a Text Message.Episode 93 of the Long Covid Podcast is a chat with Dr Viki Male who is doing research into Long Covid and menstruation, in collaboration with the app Visible, as well as the Wilco study. We chat about the 2 different studies she is involved in, and how they will hopefully bring together a load of data to give some answers.This study is a really cool example of a collaboration between people with Long Covid and researchers, so it really demonstrates that people's voices...

Send us a Text Message.Epsiode 92 of the Long Covid Podcast is the second half of my question & answer session with Dr Groysman - the link to the first half is below, if you've not already heard it.If you have more questions for Dr Groysman - or indeed any of my guests - do get in touch.Dr Groysman episode on Stellate Ganglion BlockPart 1 of this interview For more information about Long Covid Breathing, their courses, workshops & other shorter sessions, please check out this link(mus...

Send us a Text Message.Epsiode 91 of the Long Covid Podcast is a question & answer session with Dr Groysman, who you will have heard in previous episode talking about the Stellate Ganglion Block.This is part 1 of this session as it ran quite long - the link to the second half is below (or wherever you get your podcasts!)If you have more questions for Dr Groysman - or indeed any of my guests - do get in touch.Dr Groysman episode on Stellate Ganglion BlockPart 2 of this interview For more i...

Send us a Text Message.Episode 90 of the Long Covid Podcast is a chat with Dr. James Jackson, who is a psychologist specializing in neuro psychology and rehabilitation, and an internationally renowned expert on the effects of illness, including long COVID, on cognitive and mental health functioning.This was a wonderful discussion with so much help as well as hope!Purchase "Clearing the Fog - a practical guide to surviving and thriving with Long Covid"www.jamescjackson.comBrain HQ For more inf...

Send us a Text Message.Episode 89 of the Long Covid Podcast is a chat with Gina Short about her recovery from Long Covid. We chat through the things that helped as well as what she has learned from her experience.Suzy Bolt Rest Repair programThe Fern ProgrammeStasis BreathingBooks mentioned: The Way Out, Cured, Breaking Free For more information about Long Covid Breathing, their courses, workshops & other shorter sessions, please check out this link(music - Brock Hewitt, Rule of Life) Su...

Send us a Text Message.Episode 88 of the Long Covid Podcast is a chat with Dr Tania Dempsey, expert in chronic disease and a master of finding the root cause of "mystery illnesses" We talk about her experiences both before Covid, and since with Long Covid patients.www.drtaniadempsey.comhttps://aimcenterpm.com/ https://aimcenterpm.com/six-surprising-places-bacteria-are-growing-in-your-home/ For more information about Long Covid Breathing, their courses, workshops & other shorter sessi...

Send us a Text Message.Episode 87 of the Long Covid Podcast is a chat with Dr Mark Harper, consultant anesthetist, researcher and cold water enthusiast! We chat about cold water and all it's amazing benefits on both mind & body, as well as how you can do it safely.Chill (swims around the UK) Mark Harper websiteMental Health Swims Buy Mark's book "Chill" https://blackwells.co.uk/bookshop/product/Chill-by-Mark-Harper/9781797213767; https://www.waterstones.com/book/chill/mark-harper/9781797...

Send us a Text Message.Episode 86 of the Long Covid Podcast is a chat with Harry Leeming, CEO & co-founder of Visible Health. We chat through the reasons behind Visible as well as more practically what it does & how it can benefit you!**We are aware of the latest research by PLRC, just released, on Long Covid & Menstruation which hadn't yet been published at the date of recording - so the statement that there is no data on this isn't quite true, although I'd argue that it's still ...

Send us a Text Message.Episode 85 of the Long Covid Podcast is a chat with the fabulous Fiona Agombar, a yoga therapist, author and rest activist who specializes in teaching live online yoga for all fatigue conditions, including MECFS, exhaustion, burnout from stress, and of course, now long COVID.Restful Yoga for Fatigue with Fiona - an uplifting community page for those interested in yoga. Fiona's website - more about her classes and books and her story.Yoga Therapy for Stress, Burnout...

Send us a Text Message.Episode 84 of the Long Covid Podcast is a chat with Caroline Pover and puts a bit of a spotlight on the issue of vaccine injuries. Although we don't know the full story, the vax injured seem to be close cousins of Long Covid and an issue all too often swept under the carpet.Caroline tells her story and shares a few things that have helped her.Caroline Pover websiteUKCV Family website"Get well fast now" protocol"Safe & Effective" film Caroline speaking at the "B...

Send us a Text Message.Episode 83 of the Long Covid Podcast is a chat with Ryan Prior, journalist, producer, author & advocate. Ryan chats about his experiences with ME and how he saw the wave of Long Covid coming long before many of us did. We chat about his thoughts on many aspects of Long Covid & chronic illness in general, as well as his new book - The Long Haul.Buy "The Long Haul"Ryan's website For more information about Long Covid Breathing, their courses, workshops & other ...

Send us a Text Message.Episode 82 of the Long Covid Podcast is a chat with the fabulous Dr Jay T Wiles, who is a Clinical health physiologist specialising in sports performance and holistic & integrative health. He is also board certified in biofeedback and heart rate variability biofeedback which is what we're going to be covering in this episode. We chat about what HRV actually is - and then how to apply it to daily lives, especially in the context of Long Covid & chronic illness. I...

Send us a Text Message.Episode 81 of the Long Covid Podcast is a chat with Dr Liza DiLeo Thomas who is a Patient Experience Professional and also has Long Covid. Liza has also worked as an emergency medicine physician in New Orleans. We chat about how she has learned more about her role through experiencing an "invisible disability" such as Long Covid; seeing things through the eyes of a patient as well as a medical professional, as well as what empathy really means. For more infor...

Send us a Text Message.Episode 80 of the Long Covid Podcast is a chat with Dr Anjali Agarwal, consultant Physiotherpist, lifestyle consultant , EDS Hypermobility-specialised Physio, Advocacy Co-Director of long covid physio & women's health specialist. We dig deep into the relationship between EDS, Long Covid, PoTS & MCAS - it's fascinating to hear how all these things can fit together - as well as what we can do to help.Anjali's websiteKnee painLong Covid Physio BoardDr Anjali Health...

Send us a Text Message.Episode 79 of the Long Covid Podcast is a chat with Michael Towers, creator of Chronic Fatigue Superhero - a series of comics depicting life with a chronic illness. We discuss the character as well as the immense amount of work that goes into making a book when you have a chronic illness.Follow Michael on InstagramBuy the book For more information about Long Covid Breathing, their courses, workshops & other shorter sessions, please check out this link(music - Brock ...

Send us a Text Message.Episode 78 of the Long Covid Podcast is a chat with Dr Lucy Gahan, Long-hauler, Clinical Psychologist and a published author! We discuss what she has learned from her experiences and how this led her to write her book "Breaking Free from Long Covid - reclaiming life and the things that matter" - I think the title speaks for itself!Lucy's book "Breaking Free from Long Covid" For more information about Long Covid Breathing, their courses, workshops & other shorter ses...

Send us a Text Message.Episode 77 of the Long Covid Podcast is a chat with the wonderful Suzy Bolt about the fears around reinfection, or indeed infection of any kind. This is something that is a huge concern for me, and I know for many others. Suzy gives loads of really good advice - and her own experiences - around this, so I hope you're able to take as much away from it as I did. Links:360MindBodySoulThe Fern ProgrammeYouTube ChannelWorkshop on reinfection For more information about Long C...

Send us a Text Message.Episode 76 of the Long Covid Podcast is a chat with Dr Robert Groysman about the work he has been doing treating Long Covid with the Stellate Ganglion Block. We discuss what the block is and how it can be really successful in helping people. Facebook Treatment GroupYouTube ChannelDr Groysman's websiteDr Groysman in NewsMaxDr Groysman in a Houston Magazine For more information about Long Covid Breathing, their courses, workshops & other shorter sessions, please...

Send us a Text Message.Episode 75 of the Long Covid Podcast is Jackie's reflections on 3 years of Long Covid, and why there is cause for positivity. Despite the many mistakes, this is reflections on a search for answers and "hacking" your way through to see improvement.This is not medical advice! Support the Show.~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy...

Send us a Text Message.Episode 74 of the Long Covid Podcast is a chat with Dr Walter Koroshetz, Director of the National Institute of Neurological Disorders & Stroke, part of the National Institute of Health in the US. We chat through the RECOVER Initiative which is a huge study looking into all aspects of Long Covid, and also talk a little about ME/CFS research done by Dr Avindra Nath.Links:https://www.ninds.nih.gov/about-ninds/who-we-are/directors-cornerTranscript available under the "t...

Send us a Text Message.In episode 73 of the Long Covid Podcast I chat with the fabulous Dr William Li, who is a Physician, Scientist, president and medical director of the Angiogenesis Foundation, and bestselling author of “Eat to Beat Your Diet: Burn Fat, Heal Your Metabolism, and Live Longer”. Dr. Li is leading research into COVID-19 and Long Covid which is what brings him to the Long Covid Podcast!We chat through some of his findings and theories, as well as what can be done to help. I lea...

Send us a Text Message.Episode 72 of the Long Covid Podcast is a chat with Professor Amitava Banerjee about the STIMULATE-ICP study which he is co-lead of. We chat a load about the different "arms" of the study itself, how it has been developed and the role of patient involvement. We also chat about how you might be able to get involved in different parts of the study.Link to website: https://stimulate-icp.org/ For more information about Long Covid Breathing, their courses, workshops & ot...

Send us a Text Message.Episode 71 of the Long Covid Podcast is a chat with Nic Wray from Tinnitus UK (formerly the British Tinnitus Association) about all things Tinnitus. We chat about possible triggers, the ups and downs, what can be done about it and research that is ongoing into the condition.This episode ties in with Tinnitus Week which is this week - February 6-10 2023. More information in the episode, or the links below.Tinnitus UK Your Covid Recovery tinnitus information For more inf...

Send us a Text Message.Episode 70 of the Long Covid Podcast is a chat with the fabulous Lorrie Rivers. Lorrie has herself recovered from Me/CFS as well as Long Covid & Fibromyalgia and is helping others to do the same. Lorrie has been helping people manage their illnesses for years and has seen a lot of success stories, but feels she has made a break-through recently which she is really excited to share.Useful links below:What’s the Root Cause of My Illness? Lorrie Rivers - Living fr...

Send us a Text Message.Episode 69 of the Long Covid Podcast is a chat with Fiona Lowenstein, Journalist, writer, Long Covid Advocate and now author/editor of "The Long Covid Survival Guide". We chat through Fiona's early experiences of Covid & Long Covid which led them to create the Body Politic support group which is such a lifeline to so many. We also discuss the book and the idea behind it, as well as so much more. Purchase "The Long Covid Survival Guide"Long COVID Survival Guide book ...

Send us a Text Message.Episode 68 of the Long Covid Podcast is a chat with Dr David Saperstein from the Center of Complex Neurology, EDS & PoTS based in Phoenix, Arizona. Dr Saperstein has been working with complex conditions for over 20 years and is now also helping those with Long Covid and post-vaccine symptoms.This is a fascinating discussion about approaches to diagnoses & treatment, how certain conditions can affect one another as well as what can be done.I hope you enjoy as muc...

Send us a Text Message.Episode 67 of the Long Covid Podcast is a chat with two wonderful people from the Decode ME genetics study – Professor Chris Ponting who is the lead on the study, and Andy Devereux-Cooke, co-founder of the Science for ME forum and also an investigator (PPI) on the DecodeME Management Group. We discuss the study itself as well as some of the background behind it.If you are interested in signing up (or would just like some more information about the study) please go to De...

Send us a Text Message.Episode 66 of the Long Covid Podcast is a chat with the fabulous Lauren Stiles, President & co-founder of Dysautonomia Internation. Lauren describes herself as a "very high functioning sick person" and has so much amazing knowledge to impart about all forms of Dysautonomia itself, as well as the diagnostic journeys that many of us find ourselves on. This was a hugely enjoyable conversation - I hope you enjoy it as much as I did!Dysautonomia International WebsiteDysa...

Send us a Text Message.Episode 65 of the Long Covid Podcast is a wonderful collection of creativity inspired by Long Covid, from children to adults and all across the world. It's an inspiring listen as these talented people tell their own stories and perform their own work.If you're inspired - please get in touch - I always love to hear from you and do join the FB group - link below.Long Covid Choir - "When we sing together" by Vicky Jacobs (Sound engineer Nick Westoby) Julia's plants & a...

Send us a Text Message.Episode 64 of the Long Covid Podcast is some personal reflections on the last 6 months and this year. Things I've learned, and what has helped me. Of course, I am not a medical professional, and this is not advice.I'm not recovered yet, but have seen some improvement. Always very happy to hear from you - what's helped you and how are you doing?My Vedicinals blogFood Intolerance testEpisode 40 - Dr Boon LimEpisode 49 - Adrian & Leanne (wild swimming)Safe & Sound ...

Send us a Text Message.Episode 63 of the Long Covid Podcast is a chat with Dr Michael Bagnell, Functional Neurologist & Chiropractic Physician based in Miami, Florida. We talk about all things Long Covid and the brain - what's causing things to go wrong and how to fix them! Useful links below.www.bagnellbraincenter.comhttps://www.bagnellbraincenter.com/online-forms.html"Persistent Brainstem Dysfunction in Long Covid - a Hypothesis" Support the Show.~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~...

Send us a Text Message.Episode 62 of the Long Covid Podcast is a chat with the wonderful Professor Nisreen Alwan. We chat about her experiences with Long Covid as a first-waver, her ability to work and what made this possible. We also talk about social media, her experience of researching Long Covid as well as some thoughts about changes that should happen going forward. TED talk For more information about Long Covid Breathing, their courses, workshops & other shorter sessions, please che...

Send us a Text Message.Episode 61 of the Long Covid Podcast is a chat with Rosie & Colin Pidgeon. Rosie has had Long Covid for a little over a year after catching it at school. Rosie talks through her symptoms & what has helped; and Colin, her wonderfully supportive Dad, describes how he's adjusted his & his family's life to help support Rosie. Rosie is also a really talented artist, and is curating an exhibition at the start of December, in aid of Long Covid Kids. Links bel...

Send us a Text Message.Episode 60 of the Long Covid Podcast is a chat with Reema Ahmad who has Long Covid following a 2020 infection but has had a difficult route to diagnosis. We chat through a lot of her experiences and what she has learned from them, things that have helped her and lessons learned.This is a really frank and honest discussion and will hopefully make a lot of people feel validated and heard.Reema's book - Un-Parenting For more information about Long Covid Breathing, their co...

Send us a Text Message.Episode 59 of the Long Covid Podcast is a chat with the fabulous Vikki Jones, personal trainer, dietitian, wellness coach and former international athlete. Vikki is suffering with Long Covid and has developed a passion for breathing and helping others going through the "longhaul experience"We chat through all sorts of things from her own experiences, the collective trauma we all suffer as well as some practical advice for things we can do NOW to improve our breathing. P...

Send us a Text Message.Episode 58 of the Long Covid Podcast is a chat with Fiona Jones, Co-lead of the LISTEN trial which is funded by the NIHR and is currently recruiting in parts of England & Wales.We chat about the 2 parts of the trial, how it's been set up and the benefit of their patient involvement both for the researchers & the the patients themselves.Home (listentrial.co.uk)What do people with long Covid think of LISTEN? (listentrial.co.uk)~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~...

Send us a Text Message.Episode 57 of the Long Covid Podcast is a chat with Dr Sanjay Gupta, a doctor who has been specialising in the treatment of PoTS since before Long Covid. We chat about the influx of PoTS patients since Covid began, how he got into treating these patients as well as what his treatment recommendations would be (some of which can be done from home ourselves).Youtube channel PoTS Specialist website (lots of resources & some discount codes) Dr Sanjay Gupta webs...

Send us a Text Message.Episode 56 of the Long Covid Podcast is a chat with Johanna Rayl who has recovered from Long Covid. We chat through her initial illness, how this progressed and then how she recovered. We also chat through some things she learned along the way and useful tips with the benefit of hindsight.(Transcript now available - sorry for the delay)CFS UnravelledANS rewireCurable appJohanna's 8 pieces of advice articlePodcast on fear~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~...

Send us a Text Message.Episode 55 of the Long Covid Podcast is a chat with Dr Jacob Teitelbaum, Chronic Fatigue Specialist and author of "From Fatigued to Fantastic". We chat about post-viral illness and many of the things that can be done to help people to recover.There's lots of inspiring & useful information here (transcript now live - sorry for the slight delay) Cures A-Z app on Google Play or Apple www.Vitality101.com (finding information) recoveryfactors.comwww.EndFatigue...

Send us a Text Message.Episode 54 of the Long Covid Podcast is a chat with Elizabeth Dreicer, CEO of Consuli. We chat a load about what Consuli does, and the study into Long Covid & immunology with La Jolla Institute of Immunology. It's a fascinating discussion so really interesting to everyone!Consuli.netConsuli Long Covid Study InformationLa Jolla Institute for Immunology~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self ...

Send us a Text Message.Episode 53 of the Long Covid Podcast is a chat with Dr Deepak Ravindran, a pain specialist and lead of the Long Covid Service in Berkshire. We chat about what causes pain in Long Covid (& the crossovers with other conditions) as well as some strategies of how to help. Deepak also gives some insight from his work with the Long Covid Clinic which is really fascinating and will he helpful to everyone.The Pain-Free Mindset bookApologies for the occasional lack in qualit...

Send us a Text Message.Episode 52 of the Long Covid Podcast is a chat with Dr Margaret Koziel, Chief Medical Officer of Axcella Therapeutics. Earlier this year I spoke to Margaret (& Bill, CEO) about AXA1125, a drug they are developing to help people with Long Covid. When we spoke before, they were just heading into Clinical Trials for AXA1125, and Margaret is here to tell us about the exciting results from that trial, and also the next steps. Axcella WebsiteResults of Clinical Trialclini...

Send us a Text Message.Episode 51 of the Long Covid Podcast is a chat with Darren Brown, Chair of Long Covid Physio. Darren talks about what disability means and can look like for different people. Measuring disability can be so difficult and he discusses some possible better ways of doing it. This is a fascinating short follow-up to episode 47 (which is absolutely worth a listen too) Links:1) Website 2) About Long COVID Physio3) Resources 4) Quick Access5) Video Series6) FisioCamer...

Send us a Text Message.Episode 50 of the Long Covid Podcast is a chat with Chrissi Kelly, founder of the UK charity AbScent, a charity which helps people with smell & taste loss or change. We chat about the charity, how it can help people as well as some helpful tips for those experiencing this symptom. Abscent websiteAbScent NetworkYoutube channelHuel (UK)~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you en...

Send us a Text Message.Episode 49 of the Long Covid Podcast is a chat with Dr Adrian Baker & Leanne about wild swimming. Adrian, a GP in Nairn in north-east Scotland, is an avid wild swimmer as well as having also had Long Covid and recovered from it. Leanne, also from Nairn, has had her life completely transformed by wild swimming and hearing her story is incredibly inspiring for anyone listening. We chat through both Adrian & Leanne's experiences as well as some really useful advice...

Send us a Text Message.Episode 48 of the Long Covid Podcast is a chat with Saskia Mulder, a nurse living with Long Covid. We chat through some of her experiences, some of the things that have helped her in her journey and about mental health (& the importance of seeking help). We also chat a load about her trip to South Africa to see "Doctor Jaco", a load about microclots & the treatment that followed.Saskia is completely honest about her experiences, so a really useful listen for any...

Send us a Text Message.Episode 47 of the Long Covid Podcast is a chat with the fabulous Darren Brown, Chair of Long Covid Physio. We talk about what Long Covid Physio is and how it came into being as well as some of the fabulous resources that are on their website. We also talk a load about the Long Covid Physio International Forum, which is a fantastic looking event coming up on 9-10th September this year. A link to register is below (as well as links to a whole load of other really brillian...

Send us a Text Message.Episode 46 of the Long Covid Podcast is a chat with patient advocate, researcher & author Gez Medinger who many of you will know from his wonderful YouTube videos on Long Covid. We chat around his experiences of Long Covid, how this led him down a bit of a rabbit hole and the book which has come out of it! It was great fun chatting and hopefully we've come up with something useful for you to listen to. There is the potential for a follow-up, so do send in your quest...

Send us a Text Message.Episode 45 of the Long Covid Podcast is a chat with endocrinology wizard Keith Littlewood about hormones, the thyroid & how this could all link in with the Long Covid puzzle. We chat through all things thyroid, why it can be so complicated and what to look out for (as well as what could be done to help). We also chat around loads of other stuff - it was super interesting for me, so I hope there's something in there for you too!Website - lots of really useful infoMed...

Send us a Text Message.Episode 44 of the Long Covid Podcast welcomes back Moira Newiss, Nutritional Therapist, to talk a bit more in depth about how we make our energy. If you haven't already, I highly recommend listening to episode 21 where Moira talks a lot about different foods. In this episode we dive a little deeper into some of the mechanisms as well as what we can do to support them and journey back towards health.Moira's Easy Healthy Meals Blog on KetoMoira's Website~~~~~~~~~~~~~~~~~~...

Send us a Text Message.Episode 43 of the Long Covid Podcast is a chat with Dr Mohammad Bashashati, Clinician Scientist & Internist and Senior GI Fellow at Texas Tech University Health Sciences Center in El Paso, Texas. We chat about GI issues in both acute and Long Covid, and the huge numbers of people who present with these issues, despite it being a topic that isn't talked about enough. We chat about DGBI (disorders of the gut brain interaction), what this means and what might hel...

Send us a Text Message.Episode 42 of the Long Covid Podcast is a chat with Dr Alison Twycross, founder of Long Covid Nurses & Midwives UK. We chat through her experiences with Covid & then Long Covid as well as her work in employment and specifically with nurses & midwives. There are a lot of employers who are treating their staff well, but sadly there seem to be more that aren't and we chat about some of the problems & possible solutions to helping people with Long Covid (&am...

Send us a Text Message.Episode 41 of the Long Covid Podcast is a chat with Joachim Gerlach about Vedicinals-9 - a nutraceutical developed to help Covid and Long Covid. We chat about how this differs to pharmaceuticals and a bit about how it was developed. We also chat a little about the Long Covid Foundation (link below) and what it is hoping to achieve. Vedicinals Website (can be ordered from here - also lots of info about Vedicinals & link to clinical trial) Long Covid Found...

Send us a Text Message.Episode 40 of the Long Covid Podcast is a chat with the wonderful Dr Boon Lim. We talk about the heart and how it's connected to the rest of the body, what can go wrong when something like Long Covid affects the body and how we can help ourselves and get better (what more could we want?!)I have already listened to this episode several times myself and actually felt instantly slightly better after hearing it! It's quite a long listen but it's really worth getting to the ...

Send us a Text Message.Episode 39 of the Long Covid Podcast is a chat with Lynn Laidlaw & Tracy Ibbotson who are very involved in research involvement and PPI (Patient & Public Involvement) but they have had very different journeys to this point.We chat through some of their experiences, why it is really worthwhile to get involved and how this might be possible in different ways.If you'd like to know more, you can get involved with Tracy at Glasgow uni or the UK research involvement g...

Send us a Text Message.Episode 38 of the Long Covid Podcast is a chat with Dr Tina Peers who is a leading expert in MCAS - Mast Cell Activation Syndrome, a little known condition which seems to be intertwined with Long Covid. As people with Long Covid struggle to learn about the condition, Dr Peers shares her knowledge about MCAS, some treatment/management options and some of the experiences she has had with it. We also talk about a few other things she has found that can help with MCAS and L...

Send us a Text Message.Episode 37 of the Long Covid Podcast is a chat with Dr Asad Khan who has become well-known among the Long Covid communities. Asad caught Covid whilst working as a respiratory doctor on Covid wards, and has since developed Long Covid.We chat through this experiences as well as what he has done in terms of treatments & managing symptoms. There is loads of really useful stuff in here - it was a pleasure chatting and I hope some of it is useful to you too.Links:Microbio...

Send us a Text Message.Episode 36 of the Long Covid Podcast is a chat with Dr Mark Faghy about the work he and his team are doing to support rehabilitation for Long Covid, based at the university of Derby.The project has many arms and he explains all the different bits they are looking into, and how important listening to the patient voice is. Although all things take time - it's good that Mark & his team are looking to do things right - and I'm looking forward to seeing how things go for...

Send us a Text Message.Episode 35 of the Long Covid Podcast is a chat with Dr. Margaret Koziel, Chief Medical Officer and Bill Hinshaw, CEO from Axcella Therapeutics. Axcella Therapeutics is a biotech company based in Boston and they are currently working in collaboration with Oxford University on a clinical trial testing the impact of Long Covid on overall mitochondrial function, particularly the ongoing fatigue and brain fog symptoms.Links:Axcella Therapeutics Announces Initiation of AXA112...

Send us a Text Message.Episode 34 of the Long Covid Podcast is a chat with Sam Munslow about her experiences with Covid and then Long Covid, and how that led to her new book "We Will Covive" and her becoming The Covid Coach.Sam's book is written with diary entries followed by reflections and it was fascinating reading it because I saw so many parallels from my own experiences, and had had similar reflections myself! We also talk about how our thoughts can be harmful and how "mental self-harmi...

Send us a Text Message.Episode 33 of the Long Covid Podcast is a chat with Professors Resia Pretorius & Douglas Kell about their discovery of microclots & hyperactive platelets in the blood of people with Long Covid, what this means and more about their research into this. We cover a whole load of amazing stuff from causes to possible treatments - I hope you enjoy listening as much as I enjoyed speaking to them! Links:Doug's Clots website: http://dbkgroup.org/longcovid/ Resia's articl...

Send us a Text Message.Episode 32 of the Long Covid Podcast is a chat with Esther about her Long Covid journey and eventual recovery. I think it's important to hear that people have recovered as it gives those of us who are still suffering a bit of hope. We talk about what helped her (and what didn't!) and although everyone's journey will be different, hopefully some of what we talk about will be helpful to you.Of course, neither myself or Esther are medical experts so make sure you listen to...