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This podcast is for people with Parkinson's, Parkinson's care partners and Parkinson's providers. You'll hear from movement disorder specialists, neurologists, psychiatrists, physical and occupational therapists, complementary therapists, people with Parkinson's and Parkinson's care partners on how to live well with Parkinson's today.
- 180 - Mobility Matters: NexStride and the Parkinson's Community
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Mobility Matters: NexStride and the Parkinson's Community
In this episode, we chat with Sidney Collin, the inventor of NexStride: a device transforming mobility for people with Parkinson's. Join us as Sidney shares the journey from idea to creation, offering insights about her innovative solution and overarching mission to empower people with confidence and independence.
To learn more about NexStride and DeOro Devices, please visit: https://www.getnexstride.com/ or email: info@deorodevices.com
To learn more about the Parkinson’s wellness fund, please visit: https://parkinsonswellnessfund.org/
Click here to subscribe for our podcast and video content on YouTube.
Click here to learn more about the Davis Phinney Foundation for Parkinson’s.
Season 5 Episode 10
Wed, 01 May 2024 - 23min - 179 - The Parkinson's Podcast Unfiltered: Stigma
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In the debut episode of The Parkinson's Podcast: Unfiltered, hosts Heather Kennedy and Kat Hill explore the often overlooked stigma surrounding Parkinson's. Through personal stories and insights, they challenge misconceptions and explore how shifting narratives can empower minds and reshape perceptions. Tune in for a fresh perspective on living with Parkinson's.
Click here to subscribe for our podcast and video content on YouTube.
Click here to learn more about the Davis Phinney Foundation for Parkinson’s.
Season 5 Episode 9 (Unfiltered Episode 1)
Wed, 24 Apr 2024 - 32min - 178 - Disability and Changes of Ability in Parkinson’s
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In this episode, panelists discuss ways that Parkinson’s has affected their abilities and how they navigate these changes. As always, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truths and share their journeys with all of us.
Click here to subscribe for our podcast and video content on YouTube.
Click here to learn more about the Davis Phinney Foundation for Parkinson’s.
Wed, 17 Apr 2024 - 57min - 177 - Advanced Parkinson's with Dr. Karunapuzha
This content is made possible through generous donations made by our listeners.
In this episode, Dr. Karunapuzha discusses advanced Parkinson’s with Davis Phinney Foundation Executive Director Polly Dawkins. Dr. Karunapuzha covers multiple interpretations of what “advanced Parkinson’s” means, what symptoms are associated with advanced Parkinson’s, and possible ways to manage those symptoms.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
Wed, 03 Apr 2024 - 57min - 176 - The SteadyScrib Story: A Pen for Parkinson's
This content is made possible through generous donations made by our listeners.
In this episode, discover the story behind Izzy Mokotoff and Alexis Chan's innovative pen for people living with Parkinson's: SteadyScrib. Learn about their journey and motivations--inspired by Izzy's grandfather--and the impending launch of SteadyScrib, set to publicly debut later this year.
Want to learn more about SteadyScrib? Find out more about their mission on their website.
Want to watch the video version of this podcast? You can watch it on our YouTube!
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
Wed, 20 Mar 2024 - 23min - 175 - A Conversation About Clinical Trials
This content is made possible through donations made by our listeners.
In this episode, Mark Stacy, MD, and Peter Schmidt, PhD, discuss participation in clinical trials for Parkinson’s. Dr. Stacy is currently a Professor of Neurology at the Medical University of South Carolina, and has been involved in Parkinson’s care and research for over 30 years. Dr. Schmidt, a Davis Phinney Foundation board member, is the Chief Scientific Officer for Rho: a company that supports clinical trial strategy, design, and operations.
Want to read the article associated with this podcast? Check it out on our website!
Want to watch the video version of this podcast? You can watch it on our YouTube!
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
Wed, 06 Mar 2024 - 40min - 174 - A Special Episode with Davis Phinney and Kevin Kwok and the No Barriers Podcast
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This is a special edition of the Parkinson’s Podcast, presented by the No Barriers Podcast. Join us for a candid conversation with Davis Phinney, co-founder of the Davis Phinney Foundation, and Kevin Kwok, a Foundation board member, as they share their compelling journeys with Parkinson’s.
To learn more about the No Barriers Podcast, please visit: https://nobarriersusa.org/podcast/
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.
Wed, 21 Feb 2024 - 41min - 173 - Music Therapy and Parkinson’s with Hadley Rentz
This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website.
In this episode, music therapist Hadley Rentz from Music Worx, Inc., explains the benefits of music therapy for people living with Parkinson’s.
To learn more about Music Worx, Inc. and their AudAbility virtual music therapy class for people living with Parkinson's, visit MusicWorx.com. You can subscribe to learn more about Music Worx, Inc. here.
To learn more about the Davis Phinney Foundation programs in Spanish, please visit our Spanish site.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.
Wed, 07 Feb 2024 - 26min - 172 - OFF Time in Parkinson's
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In this episode, Dr. Yasar Torres-Yaghi answers questions about OFF time in Parkinson's, including symptoms, medications, deep brain stimulation, and more.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
Want to read the article associated with this podcast? Check it out on our website!
Want to watch the video version of this podcast? You can watch it on our YouTube!
This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.
Wed, 24 Jan 2024 - 55min - 171 - Nurturing Resilience Through Poetry with Wayne Gilbert
This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website.
Wayne Gilbert--a retired teacher and professor of English and educational psychology--was diagnosed with Parkinson's in 2005. Since his diagnosis, he has taken refuge in poetry, having written hundreds of "Parkie" poems, which he refers to as "metaphor medicine." In this episode, Wayne explains the importance of using metaphors in poetry to navigate the complexities of living with Parkinson's and performs a few of his favorite poems.
Loving the Parkinson's Podcast? Listen to more episodes on our website!
The information in this podcast is for general information purposes only. It includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.
Wed, 10 Jan 2024 - 23min - 170 - Parkinson's Pain Assessment & Management
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:https://dpf.org/podcastdonation
In this interview, Dr. Apurva Zawar, PT, DPT, discusses one of the most common non-motor symptoms of Parkinson’s, pain, the different types of pain, and where you can find tools and resources to manage it.
Want to watch the video version of this podcast? You can watch it on our YouTube!
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
The information in this podcast is for general information purposes only. It includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.
Relevant Links
Pain in PD Self-Assessment Tool Dr. Zawar’s Clinic Beyond Rehab Dr. Zawar’s program for pain in Parkinson’s Contact Dr. ZawarWed, 27 Dec 2023 - 25min - 169 - Sleep, Light, and Neurodegeneration
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
In this session from the Victory Summit Virtual Event: Sleep and Parkinson's, Dr. Aleksander Videnovic explains sleep attacks, RBD (REM Sleep Disorder), Restless Legs Syndrome (RLS), Insomnia, Daytime Sleepiness, Drowsiness, Fatigue, as well as how to manage these, the importance of understanding and attending to your circadian biology and using things like light and timing of exercise and medications to improve sleep.
Want to read the article associated with this podcast? Check it out on our website!
Want to watch the video version of this podcast? You can watch it on our YouTube!
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
Wed, 20 Dec 2023 - 1h 01min - 168 - People with Parkinson's Share Their Deep Brain Stimulation (DBS) Stories
Deep Brain Stimulation (DBS) is a highly effective and reasonably safe treatment for Parkinson’s; however, it’s also frequently misunderstood by people who have been recently diagnosed. The success stories about how people are sometimes living symptom and medication-free as a result of getting DBS understandably lead many who’ve been newly diagnosed to want to get the treatment as soon as possible.
In an earlier webinar, we invited an esteemed panel of experts to talk about Deep Brain Stimulation (DBS).
In this episode of the Parkinson's Podcast, we spoke with six people with Parkinson’s who’ve had DBS. We discussed:
How to begin the process
How to talk to your family and friends about DBS and your hopes and concerns about it
What to expect during the approval process
What the surgery is really like (and do you have to shave your head)
What recovery is like and what kind of support you might need
The challenges of programming your device and the joy that comes when you get it right
The myths, challenges, and victories of DBS
And more! We hope you enjoy it!
Want to read the article associated with this podcast? Check it out on our website!
Want to watch the video version of this podcast? You can watch it on our YouTube!
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
Want to learn more about Deep Brain Stimulation? Check out our DBS Hub here!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Wed, 13 Dec 2023 - 1h 21min - 167 - Mortality and Parkinson's: The Elephant in the Room
In this episode, Dr. Bastiaan Bloem talks with Davis Phinney Foundation Executive Director, Polly Dawkins, about a recent article he co-authored, "The Elephant in the Room: Critical Reflections on Mortality Rates Among Individuals with Parkinson’s Disease."
In the article, Dr. Bloem et al. write, "Although the survival of people with Parkinson's has improved over time, people with Parkinson's still live fewer years than their age- and sex-matched population comparators, albeit at older ages this difference can be small." Dr. Bloem and his co-authors also acknowledge that doctors and researchers "often emphasize the tremendous impact of [Parkinson's] on an individual’s life. However, in public awareness campaigns, we largely avoid discussions on the survival of people with Parkinson’s..."
It's understandable: the topic of mortality and Parkinson's is often painful. However, in this episode of The Parkinson's Podcast, Dr. Bloem argues out that openly acknowledging that Parkinson's shortens lifespans is a good thing for people with Parkinson's for a multiple reasons.
Listen to the episode to hear Dr. Bloem's perspective about multiple topics related to mortality and Parkinson's, including:
The commonly held view that people die with Parkinson's, not from Parkinson's Pesticides, chemical exposure, and other environmental risks Reasons for hope, including specific advice about exercise and diet The policy and funding implications of candid discussion of mortality in Parkinson'sWant to read the article associated with this podcast? Check it out on our website!
Want to watch the video version of this podcast? You can watch it on our YouTube!
Loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Fri, 08 Dec 2023 - 17min - 164 - Fear and Shame Part 2
A previous version of this podcast had sound issues. We apologize and hope you enjoy!
During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson’s. They talked about the difference between shame, guilt, and embarrassment, and they shared the various ways shame shows up for them. Again, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truth and share their journeys with all of us.
In this episode, topics discussed include:
Feeling a loss of relevance Shame when I was diagnosed Shame around impulse control Side-effects of medications and shame Importance of community to overcome shameand more! We hope you enjoy!
Want to read the article associated with this podcast? Check it out on our website!
Want to watch the video version of this podcast? You can watch it on our YouTube!
Loving the Parkinson's Podcast? You can listen to more episodes on our website!
Want to come to the next Living with Parkinson's Meetup? Join us on the third Thursday of every month at 1 pm MDT by registering here.
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Wed, 06 Dec 2023 - 1h 00min - 163 - Fear and Shame Part 1
During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson’s. We addressed kids, relationships, progression, falling, loss of identity, cognition, and more.
In this episode, topics discussed include:
How to address fear and shame in yourself and with others How to handle the fear of being marginalized What is the biggest fear you have of the unknown? Dealing with the fear and grief of missing out Handling the fear of being alone and dating with Parkinson's How fear has evolved in our panelists from their diagnosis to the presentand more! We hope you enjoy!
Want to read the article associated with this podcast? Check it out on our website!
Want to watch the video version of this podcast? You can watch it on our YouTube!
Loving the Parkinson's Podcast? You can listen to more episodes on our website!
Want to come to the next Living with Parkinson's Meetup? Join us on the third Thursday of every month at 1 pm MDT by registering here.
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Wed, 22 Nov 2023 - 59min - 162 - Managing Depression and Anxiety in Parkinson's
On September 17, 2021, we held The Victory Summit® Virtual Event: Mental Health and Wellness, shining the spotlight on how to manage the symptoms you can’t see in Parkinson’s. During this event, Dr. Gregory Pontone spoke to us about managing depression and anxiety in Parkinson's.
Topics discussed include:
What are the statistics on how many people are currently dealing with depression? Wellness vs. Wellbeing What is mental illness? What is the impact of mental illness on Parkinson's? What are the differences between depression and anxiety? Different types of anxiety medicine and how they impact Parkinson's symptoms The effect of anxiety on dystonia Dealing with compulsive thoughts What are some strategies for families dealing with anxietyand depression at home? What is apathy?and more! We hope you enjoy!
Want to see other videos from our Victory Summit on Mental Health? Check it out on our website!
Want to watch the video version of this podcast? You can watch it on our YouTube!
Loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Wed, 15 Nov 2023 - 58min - 161 - A Conversation with Brian Grant and Davis Phinney
Brian Grant had a long and successful 12-year career in basketball. In 2008, at age 36, Brian was diagnosed with Parkinson's. Davis Phinney was an Olympic Bronze medalist and Tour de France stage winner who claimed the most victories of any cyclist in American history. In 2000, at age 40, Davis was diagnosed with Parkinson’s. Since being diagnosed, both of these athletes have made it their mission to do everything they can to thrive not just survive with Parkinson's, and inspire others to do the same.
In this genuine, inspiring, and relatable conversation, Brian and Davis talk about their experiences as athletes receiving a Parkinson's diagnosis, their difficulties in accepting the physical and mental challenges that have occurred with the progression of their Parkinson's, and how and why they are passionate about living well with Parkinson's each and every day. We hope you enjoy it!
Want to read the article associated with this podcast? Check it out on our website!
Want to watch the video version of this podcast? You can watch it on our YouTube!
Loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Thu, 09 Nov 2023 - 56min - 160 - Living with Parkinson's from a Cultural Context
During this episode of the Parkinson's Podcast, Dr. Gregory Pontone and Dr. Indu Subramanian discuss how cultural context can impact what living well with Parkinson's looks like, including nutrition, exercise, community, and more.
Topics discussed include:
What does "cultural context" mean? Holistic health in cultural context The importance of community in a cultural context How to help address the divide between clinical care and cultural context as a care partner/care giver Acceptance of Parkinson's symptoms by family and cultural community Feeling culturally "separated" by your diagnosis Finding new community How to create safer spaces as advocates and alliesand more! We hope you enjoy!
Want to read the article associated with this podcast? Check it out on our website!
Want to watch the video version of this podcast? You can watch it on our YouTube!
Loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Wed, 01 Nov 2023 - 57min - 159 - Dopamine Nation with Anna Lembke
In this episode, Dr. Anna Lembke, an internationally recognized expert in addiction and dopamine, discusses addiction, dopamine's role in pain and pleasure, dopamine agonists, and more.
**Please note, taking regular carbidopa/levodopa alone very rarely leads to someone experiencing impulse control disorders, so please do not delay taking these Parkinson’s medications because of a fear of developing an impulse control disorder. If your symptoms are getting in the way of your daily activities and quality of life, work with your doctor to find the right dose for you. Dopamine agonists, on the other hand, which are more commonly prescribed in the early stages of Parkinson’s, are the types of medication that put people at greater risk. Still, it’s not a given. Each person responds to medication differently, and whatever side effects you do experience are almost always duration and dose-dependent. To learn more about Parkinson’s medication, read Medication and Parkinson’s. For more on impulse control disorders and dopamine agonists, read Impulse Control Disorders and How to Manage Them.
Topics discussed include:
Can you define pleasure and pain and the role dopamine plays in them? How has our drive for pleasure changed over time? Does being low on dopamine contribute to the pain many with Parkinson’s experience? How is the pain/pleasure cycle disrupted in the absence of naturally produced dopamine? What is a dopamine precursor, and what does it have to do with impulse control disorders (ICDs) in people with Parkinson’s? Are there any early warning signs that someone may be experiencing negative side effects such as impulse control disorders from taking their medication? What is addiction, and how does it work in someone with Parkinson’s? What is the value of truth-telling for someone who is struggling with an impulse control disorder or any other addiction? Is it possible that Parkinson’s meds can expose a preexisting addiction or propensity for addiction? Is there a link between head trauma and addiction?and more! We hope you enjoy!
Want to watch the video version of this podcast? You can watch it on our YouTube!
Loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Wed, 25 Oct 2023 - 34min - 158 - Living Alone with Parkinson's
During this episode, we talked to five people, Michael S. Fitts, Allyson Kinney, Michael Fahning, Gerrie Blavat, and Brian Reedy, who are living alone with Parkinson’s, some by choice and others not. They shared their stories and offered ideas and advice on how to live alone and well with Parkinson’s.
Topics discussed include:
Why are you living alone with Parkinson's? How does a service dog help in living alone with Parkinson's? What is the hardest part of living alone with Parkinson's? Finding more important things to worry about Accepting your limits while living alone with Parkinson's What different tools make living alone with Parkinson's easier? How to get around when you physically can't driveand more. We hope you enjoy!
Want to read the article associated with this podcast? Check it out on our website!
Want to watch the video version of this podcast? You can watch it on our YouTube!
Loving the Parkinson's Podcast? You can listen to more episodes on our website!
Addtional Resources:
Advances Directives and Parkinson’s
How Service Dogs Can Support People With Parkinson’s
Parkinson’s Nutrition and Living Well
Life With Dempsey, My Parkinson’s Service Dog
Keep ON Moving – A New Online Parkinson’s Exercise Program
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Wed, 18 Oct 2023 - 1h 01min - 157 - Questions and Answers
During this session, panelists from the Living with Parkinson's meetup answered questions from the chat on everything Parkinson’s.
Topics discussed include:
Why is it important to work with experts in Parkinson’s? What is a biomarker? Why does it take so long to develop a drug for Parkinson’s? What are the challenges with diagnosing Parkinson’s? What are the potential impacts of surgery on Parkinson’s symptoms? How do you make sure all medical providers have critical information? What is brain fog? How do you balance having Parkinson’s and caring for others? What is speech therapy for Parkinson’s? How do you get out of being frozen?and more. We hope you enjoy!
Want to join us at the next Living with Parkinson's Meetup? Join us the third Thursday of every month!
Want to read the article associated with this podcast? Check it out on our website!
Loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Wed, 11 Oct 2023 - 56min - 156 - Urinary Dysfunction and Parkinson's
In this episode, Dr. Arun Mathur, a urologist with specialized knowledge of Parkinson's, explains the symptoms, causes, and treatments of urinary dysfunction in people with Parkinson's.
Topics we discuss include:
What are the differences between urinary dysfunction in different neurological diseases? What is urinary dysfunction? Urinary dysfunction can be a precursor to a Parkinson's diagnosis How does urinary dysfunction affect a person with Parkinson's quality of life? When should you seek treatment? Urinary dysfunction is more prevalent in Later Onset Parkinson’s Non-pharmacological and surgical treatments DBS and Urinary Dysfunction Carbidopa/Levodopa’s effect on urinary dysfunction Pharmacological treatments Catheterization Prostate symptoms versus Parkinson’s symptoms When will non-pharmacological treatments show results?and more! We hope you enjoy!
Want to watch the video recording of this audio? Watch here!
To view the show notes and related resources for this webinar, visit our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Wed, 04 Oct 2023 - 34min - 155 - What I Wish I Knew Then
In this episode, panelists discussed what they wish they knew when they were diagnosed with Parkinson's and what advice they would give now to those who are newly diagnosed.
Topics we discuss include:
What do you wish you had known when you were first diagnosed with Parkinson’s? Being kind, listening to elders, and seeking help Take things seriously, but not too seriously Don't ignore your symptoms Medications The moment when you are first diagnosed Having a movement disorder specialist Support groups Importance of exercise Socializing, being with people, and getting out of your headand more! We hope you enjoy!
Want to watch the video recording of this audio? Watch here!
Want to join the Living With Parkinson's Meetup? Register here!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Wed, 27 Sep 2023 - 1h 00min - 154 - Demoralization, Meaning, and Parkinson's
In this episode of The Parkinson's Podcast, Greg Pontone, MD, Indu Subramanian, MD, and Bradley McDaniels, PhD, discuss how symptoms of depression begin and how to combat them.
In this episode, we talk about:
How Dr. Subramanian, Dr. McDaniels, and Dr. Pontone are working on What clinicians can do to make your symptoms better How Dr. Subramanian combines Eastern and Western medicine The impact of demoralization on people with Parkinson's The importance of normalizing diagnosing depression The difference between demoralization in people with early-onset versus late-onset Parkinson's Changes in patient care since this panel started researching demoralization Dr. McDaniels' mother's journey with demoralization and Parkinson's The signs of depression and how to know when to see a doctorand more. We hope you enjoy!
Want to read the article associated with this podcast? You can read it here.
Want to watch a video of this podcast? You can watch it on our channel!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Wed, 20 Sep 2023 - 55min - 153 - Vulnerability with the Living with Parkinson's Meetup
During this episode, our Living with Parkinson's Meetup panelists discussed physical, social, and emotional vulnerability in Parkinson’s. They offered their thoughts about how to adapt to changes that arise as Parkinson’s progresses. As always, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truth and share their journeys with all of us.
In today's episode, we talk about:
Start of discussion on vulnerability Vulnerability vs. danger Social vulnerability Adapting to difficult situations Going to the worst-case scenario Community as a source of strength Impact of stories, beliefs and finding communityand more! We hope you enjoy it!
Want to come to our next Living with Parkinson's Meetup? Join us every third Thursday of the month!
Want to watch a video of this podcast? You can watch it on our YouTube channel!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 12 Sep 2023 - 59min - 152 - 2023 Emerging Therapies and Parkinson’s
In this episode, Dr. Soania Mathur interviews Dr. Michael Okun to discuss the latest therapies for Parkinson’s, including RT-QUIC (Parkinson’s biomarker), subcutaneous dopamine pumps, vibrating gloves, rescue medications, DBS, and more.
Dr. Mathur and Dr. Okun discuss:
New discoveries in diagnosing Parkinson’s What do certain biological markers mean for diagnosis? What’s new on the horizon for Parkinson’s treatments? The subcutaneous delivery of dopamine replacement Transdermal treatment Microbiome in Parkinson’s Vibration therapy The importance of individualized care plans How to sort through all the information about Parkinson’sand more. We hope you enjoy!
Want to read the article associated with this podcast? You can read it here!
Want to watch the YouTube video of this podcast? You can watch it here!
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Wed, 06 Sep 2023 - 58min - 151 - Love, Relationships, and Parkinson's
In this episode, the Living with Parkinson's Meetup panelists discuss LOVE, relationships, and care partners, whether they be spouses, kids, friends, neighbors, etc. As always, our panelists speak with honesty and emotion, making everyone affected by Parkinson's feel less alone.
In this episode, we discuss:
Care Partners Who Think Your Parkinson’s is Going to Get Better Care Partners Who Don’t Understand Your Symptoms Pushing Your Care Partners Away The Difficulty of Communication Finding a Partner if You’re Single with Parkinson’s Partners Who Leave You Because of Your Parkinson’s Family Relationships and How Much You Should Expect from Them Not Expecting Other People to “Understand” Crossing the Boundary from a “Partner” to a “Care Partner” Accepting Help When You Need Itand more. We hope you enjoy!
You can find links for more information about topics discussed in this webinar here.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 29 Aug 2023 - 57min - 150 - Relationships and Parkinson's with the Living with Parkinson's Meetup
In this episode, the Living with Parkinson's Meetup panelists discuss how their relationships have changed, grown, and faded since being diagnosed with Parkinson's. As always, our panelists speak with honesty and emotion and make everyone affected by Parkinson's feel less alone.
In this episode, we discuss:
Relationships and Parkinson’s How relationships can strengthen after a Parkinson's diagnosis How to find people that are going through a similar experience Feeling like a burden and wanting to hide Finding situations where you feel like you can be yourself and humor Getting out of a funk Learning to ask for helpand more! We hope you enjoy!
You can find links for more information about topics discussed in this webinar here.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 22 Aug 2023 - 57min - 149 - Aging in Place with Parkinson's with Carol Chiang
In this episode, occupational therapist Carol Chiang discusses the importance of adding an occupational therapist (OT) to your Parkinson’s care team, common home adaptations that can be made to help you live well with Parkinson’s, and more.
What is Occupational Therapy? Why Can People with Parkinson’s Benefit from OT? Carol’s Business, “Evolving Homes” - How Does it Work? Practical Tips for Lighting The Importance of Contrast in Your House Common Bathroom Setup Problems Suggested Technology to Help People with Parkinson’s Considering Handles and Switches Furniture Recommendations Surface Considerations Recommendations Around Rugand more! We hope you enjoy!
You can find links for more information about topics discussed in this webinar, including links for the sheets Carol mentions, here: https://davisphinneyfoundation.org/webinar-recording-aging-in-place/
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 15 Aug 2023 - 50min - 148 - Finding Hope and Inspiration with the Living with Parkinson's Meetup
In this week's episode of the Parkinson's Podcast, panelists from our Living with Parkinson's Meetup share how they find hope and inspiration despite the everyday and ever-changing challenges of Parkinson’s disease.
In this episode, panelists share:
Quotes on Hope and Optimism from the Parkinson’s Community How They Practice Being Hopeful, Optimistic, and Grateful How Sree Pushes Through Feelings of Defeat The Importance of Connecting with People How to Find Silver Linings Face Freezing and the “Resting B” Face The Importance of Humor How to Share Non-Motor Symptoms The Difficulties of Convincing People You Have Parkinson’s How to Communicate Symptoms to Peopleand more! We hope you enjoy!
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 08 Aug 2023 - 56min - 147 - Women and Young Onset Parkinson's
In this episode, Dr. Annelien Oosterbaan talks about the impact of Young Onset Parkinson’s Disease (YOPD) on women, how women have been left out of the research for so long that their care is impacted, menstrual cycles, pregnancy, breastfeeding, medication, menopause, and much more. She also talks about what it’s like to be a gynecologist, a mother of 4, and have YOPD.
Dr. Oosterbaan answers questions like:
What happened when you were first diagnosed? What was it like with your family when you were first diagnosed? What was it like living with Parkinson’s and being pregnant? What have you learned about Parkinson’s and pregnancy? What do you think healthcare providers get wrong about pregnant women living with Parkinson’s? How does menopause affect women with Parkinson's? How does DBS affect pregnancy? What is Preg Spark?and more! We hope you enjoy it!
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 01 Aug 2023 - 32min - 146 - Young Onset Parkinson's Disease with Dr Rodolfo Savica
In this episode, Dr. Rodolfo Savica discusses the biological and social differences of YOPD (young onset Parkinson’s), treatments for YOPD, the challenges of diagnosing YOPD, and more.
Topics discussed include:
“Early” Versus “Young” Onset Parkinson’s Typical Age for Young/Early Onset Parkinson’s Treatment Differences for YOPD Diagnosing Young/Early Onset Parkinson’s Young Onset Parkinson’s and DBS (Deep Brain Stimulation) Difference in Progression Between Early Onset and Late Onset Parkinson’s Difference in Women with Early Onset Versus Later Onset Parkinson’s Exercising with YOPD Dementia and Cognitive Declineand more! We hope you enjoy!
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 25 Jul 2023 - 59min - 145 - Supportive and Whole Person Care for People with Parkinson's
In this episode, Dr. Benzi Kluger, movement disorder specialist, and Kelly Weinschreider, a person living with Parkinson’s, discuss the value of palliative care (aka supportive care or whole person care) from the very beginning of a Parkinson’s journey. We discuss what palliative care is and isn’t, the palliative care approach, how to advocate for care, where to look for care, and more.
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 18 Jul 2023 - 54min - 144 - Mindfulness, Meditation and Relaxation
The practices of mindfulness, meditation, and relaxation, beneficial to everyone, can be particularly beneficial for people living with Parkinson’s. In this conversation with Dr. Sarah Mulukutla and Dr. Evelyn Ooi, we talk about the value of learning these psychological, emotional, and spiritual tools to manage the challenges that come with living with Parkinson’s.
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 11 Jul 2023 - 28min - 143 - Work, Giving Back, Deep Brain Stimulation, and Parkinson's with Greg Ritscher
In this episode, Greg Ritscher discusses:
How he transferred the skills that made him successful in his career to live well with Parkinson’s
His experience retiring and moving
The process of writing a book
Preparing for DBS
The various ways Greg’s found to give back and spread Parkinson’s education and resources to those in the panhandle of Florida
and more! We hope you enjoy it!
For the mentioned links, resources, video recording, and more visit: http://davisphinneyfoundation.org/podcast-work-giving-back-deep-brain-stimulation-and-parkinsons-with-greg-ritscher
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 25 Apr 2023 - 55min - 142 - Addiction, Cannabis, Anxiety, Medications, and Living Well with Parkinson's with Karen Frank
In this episode, Karen Frank, a person living with Parkinson’s talks about:
How using cannabis to ease her anxiety took her down an unexpected path
How she got out of an unhealthy situation
Her experiences with depression and rehab
Her relationships, community, and living with Parkinson’s
and more! We hope you enjoy it!
For related links and resources, the video recording, and more visit: http://davisphinneyfoundation.org/podcast-addiction-cannabis-anxiety-medications-and-living-well-with-parkinsons-with-karen-frank
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 18 Apr 2023 - 48min - 141 - Cognitive Behavioral Therapy (CBT) and Parkinson’s with Dr. Roseanne Dobkin
In this episode, Dr. Roseanne Dobkin discusses:
Depression and anxiety in people with Parkinson’s
How to connect with a mental health professional
The current landscape of telehealth for mental health
What a first session with a mental health professional might look like
The definition of cognitive behavioral therapy and when it might be a fit
Managing anxiety specifically about Parkinson’s progression
Parkinson’s symptoms that can be helped with CBT
How to find a professional who is trained in CBT
The amount of time for CBT to be effective
Description of a typical CBT session
The role of care partners in managing mental health symptoms
and more! We hope you enjoy it!
For mentioned links, resources, the video recording, and more visit: http://davisphinneyfoundation.org/podcast-cognitive-behavioral-therapy-cbt-and-parkinsons-with-dr-roseanne-dobkin
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 11 Apr 2023 - 55min - 140 - “On Being Well with Chronic Illness” with Kat Hill and Nancy Peate
In this episode, Kat Hill and Nancy Peate talk about:
How they met at precisely the right place and time
Their lives with and without Parkinson's
Their path through co-authorship of “On Being Well with Chronic Illness: A Guide to Resilience and Joy with Your Diagnosis.”
What they do to live well with Parkinson’s
And more! We hope you enjoy it!
For the mentioned links, resources, the video recording, and more, visit: http://davisphinneyfoundation.org/podcast-on-being-well-with-chronic-illness-with-kat-hill-and-nancy-peate
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 04 Apr 2023 - 58min - 139 - Nutrition and Parkinson’s with Jessica Schroeder
In this episode, registered dietician and nutritionist Jess Schroeder discusses:
Weight loss and weight gain
Constipation
Increased sugar cravings
Gastric emptying
The “right” diet for Parkinson’s
Troubles with chewing and swallowing
Timing of food intake
Types of food for exercise
Food and its relationship to sleep
Eating well in assisted living and/or skilled nursing facilities
Creating an eating schedule and routine
and more! We hope you enjoy it!
For mentioned links, related resources, the video recording, and more visit: http://davisphinneyfoundation.org/podcast-nutrition-and-parkinsons-with-jessica-schroeder
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 28 Mar 2023 - 53min - 138 - Dancing, Movement, Medications, and Living Well with Parkinson's with Pamela Quinn
In this episode, professional dancer, Founder of PD Movement Lab, and person with Parkinson’s Pamela Quinn talks about:
Her story of diagnosis
How she followed her own gut in her management of the diagnosis
Her balance of using medications and lifestyle choices to manage her Parkinson’s
Her organization, PD Movement lab, and its class/course offerings
The importance of taking charge of your diagnosis
and more! We hope you enjoy it!
For mentioned links, resources, the video recording, and more visit: http://davisphinneyfoundation.org/podcast-dancing-movement-medications-and-living-well-with-parkinsons-with-pamela-quinn
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Tue, 21 Mar 2023 - 41min - 137 - Why Do I Feel Faint and Dizzy with Parkinson’s? Understanding nOH (Neurogenic Orthostatic Hypotension) with Dr. Salima Brillman
In this episode, Dr. Salima Brillman discusses:
The what and why of nOH (neurogenic orthostatic hypotension)
Treatments for nOH
In the moment tricks for managing nOH episodes
How to talk to your doctor about your symptoms
The effect of food and lifestyle choices on nOH
and more! We hope you enjoy it
Click here for the accompanying blog post to this episode, where you will find any mentioned links and resources, the video recording, and more.
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 14 Mar 2023 - 59min - 136 - Newly Diagnosed with Parkinson’s: An Interview with Dr. Aaron Haug
In this episode, Dr. Aaron Haug discusses:
How Parkinson’s is diagnosed
The non-motor symptoms of Parkinson’s
What’s happening in the brain to cause Parkinson’s symptoms
Common initial treatment options
The team approach to treating Parkinson’s
Lifestyle changes to manage Parkinson’s
Which online resources to trust
Why consider participating in research
The most important advice for someone newly diagnosed
And more! We hope you enjoy it!
Click here for the accompanying blog post, where you can find the mentioned links, additional resources, the video recording, and more.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 07 Mar 2023 - 44min - 135 - Gait, Balance, and Falling: A Conversation with the Living with Parkinson’s Meetup
Episode Description:
In this episode, panelists from our monthly Living with Parkinson’s Meetup discuss:
The what and why of falling and freezing of gait in Parkinson’s
The panelists’ experience with falling
Strategies to prevent falling
How music can be used to prevent falls
Living alone and falling
An overview of balance issues and what to do about them
and more! We hope you enjoy it!
Click here for the accompanying blog post for this episode to find the transcript, mentioned links, video recording, and more.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 28 Feb 2023 - 57min - 134 - From Care Partner to Care Giver: An Interview with Terri Pease
In this episode, Terri Pease, a care partner to her husband Peter until his passing talks about:
Letting go of the feeling of “mutuality” Learning to embrace reality Why Parkinson’s is a couple’s disease How to adapt when the plan you had for your life changes The difference between self-care and after care Handling angerand more! We hope you enjoy it!
For mentioned links, additional resources, and the video recording visit: http://davisphinneyfoundation.org/podcast-terri-pease
Tue, 21 Feb 2023 - 50min - 133 - Depression, Anxiety, and Mood Changes in Parkinson’s with Dr. Joanne Hamilton
In this episode, Dr. Joanne Hamilton discusses:
The difference between a bad mood and a clinical mood disorder Not pathologizing normal emotions Depression versus a typical grieving period after receiving a diagnosis Depression versus anxiety and the symptoms of each Suicidal ideation and signs to look for that indicate seriousness Who to seek treatment from and where Exercise and socialization as the number one treatment The what and why of anxiety in Parkinson’s Treatment options for depression, anxiety, and mood changes The what and why of apathy If talk therapy may be right for youand more! We hope you enjoy it!
Visit the blog post for this episode here to find mentioned links, related resources, the video recording, and more.
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 14 Feb 2023 - 50min - 132 - Living Well with Parkinson’s and Re-defining Identity with Jan and Bill Grimes
In this episode, Jan and her husband, Bill Grimes, share:
How their life has changed since Jan got diagnosed with Parkinson’s How Jan redefined her identity as a pianist and full-time LSU faculty when symptom severity started to increase, and she chose to retire How Jan sees Parkinson’s as a blessing Her newly defined hobbies and passions, including sewing and poetry How Jan and Bill work together as a partnership to navigate Parkinson’sand more! We hope you enjoy it!
Visit the blog post for this episode here to find mentioned links, related resources, the video recording, and more.
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 07 Feb 2023 - 43min - 131 - Parkinson’s Disease Psychosis (Hallucinations, Delusions, and Illusions): Part 2 with Dr. Dylan Wint
In this episode, Dr. Dylan Wint, Director of the Cleveland Clinic Center for Brain Health and a board-certified physician in Neurology, Psychiatry, Behavioral Neurology, and Behavioral Psychiatry, discusses:
The common misunderstanding that psychosis is always connected to mental health conditions like schizophrenia and bipolar disorder The connection between sleep and psychosis Talking to your neurologist about psychotic symptoms Pharmacological and non-pharmacological treatments The relationship between psychosis and dementia Reducing the fear of psychosis How to calm your spouse/partner during a delusion Tracking mitigating factors that may contribute to psychotic episodes Common Q & Aand more! We hope you enjoy!
Visit the blog post for this episode here to find related resources, the video recording, and more.
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 31 Jan 2023 - 26min - 130 - Parkinson’s Disease Psychosis (Hallucinations, Delusions, and Illusions): Part 1 with Dr. Dylan Wint
In this episode, Dr. Dylan Wint, Director of the Cleveland Clinic Center for Brain Health and a board-certified physician in Neurology, Psychiatry, Behavioral Neurology, and Behavioral Psychiatry, discusses:
The definition of Parkinson’s disease psychosis and what causes it The difference between complex, simple, insightful, and non-insightful hallucinations Common types of delusions and hallucinations in Parkinson’s Risk factors for Parkinson’s disease psychosis The relationship between medications and Parkinson’s disease psychosis The prevalence of Parkinson’s disease psychosis What to do when someone is experiencing psychosis Things to help reduce psychotic episodes When to seek help for psychotic symptomsand more! We hope you enjoy!
Visit the blog post for this episode here to find related resources, the video recording, and more.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 24 Jan 2023 - 30min - 129 - Parkinson's is Hard: Part 2
In this episode, the Living with Parkinson’s Meetup panelists discuss:
The importance of self-compassion Asking for help Symptoms worsening during menstruation Finding things that reinvigorate you Suicidal ideation Negative self-talk, mindfulness, and breathingand more! We hope you enjoy!
Visit the blog post for this episode here to find related resources, the video recording, and more.
Tue, 17 Jan 2023 - 22min - 128 - Parkinson’s is Hard: Part 1
In this episode, the Living with Parkinson’s Meetup panelists discuss:
The fact that Parkinson’s does progress, and treatments and techniques begin to lose their efficacy The need to slow down and do less due to Parkinson’s symptoms The importance and art of pivoting, a necessary skill when you have a progressive disease The urge to talk less and begin to isolate when symptoms worsen The importance of not comparing yourself to those around you, as difficult as it is Learning self-careand more! We hope you enjoy!
Visit the blog post for this episode here to find related resources and more.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 10 Jan 2023 - 35min - 127 - Deep Brain Stimulation (DBS), ON and OFF times, and Getting Through It with Heather Kennedy
In this episode, Heather Kennedy, a person with Parkinson’s who has been living with the diagnosis for 12 years discusses:
Three articles she’s recently written called “Gifted”, “Poison for Breakfast”, and “Sweating it Out” Her journey with Deep Brain Stimulation (DBS) The difficulty of unpredictable ON and OFF times in Parkinson’s and how those times impact relationships How her views have changed since the initial days of her diagnosis The difficulty of discerning between symptoms that are due to Parkinson’s, medications, or something else entirely The burden of explaining Parkinson’s to those who don’t understand The importance of having compassion for people with Parkinson’s and nurturing that compassion in all areas of lifeand more! We hope you enjoy!
Visit the blog post for this episode here to find related resources, the video recording, and more.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 03 Jan 2023 - 45min - 124 - The Value of Community, Meaning, and Purpose in Parkinson's
In this episode, Living with Parkinson's Meetup panelists, Sree Sripathy, Kevin Kwok, Tom Palizzi, Kat Hill, Robynn Moraites, and Heather Kennedy as well as guest Bradley McDaniels discuss:
The research connecting loneliness and quality of life Common reasons you might become lonely How to find meaning and community The feeling of wanting to “give up” with Parkinson’s Ways to get involved How to get connected in rural communities What to do when you try to connect and it doesn’t work The importance of the quality of your relationshipsand more! We hope you enjoy!
For the video recording, associated resources, and more visit: http://davisphinneyfoundation.org/podcast-recording-the-value-of-meaning-purpose-and-community-in-parkinsons
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 11 Oct 2022 - 59min - 123 - Managing Motor Symptoms During OFF Times in Parkinson's
In this episode, panelists Yasar Torres-Yaghi (movement disorder specialist), Amanda Craig (occupational therapist), and Joe Van Koeverden (person with Parkinson's), discuss how to manage motor symptoms during OFF times in Parkinson's. In particular they discuss:
What is an OFF time? Distinguishing OFF times from other “feelings” The impact of stress on OFF times How to adapt your home for OFF times Optimizing your medications Non-motor symptoms associated with OFF times Rescue meds/rescue therapy Rational polypharmacy On demand and as needed medications Planning your schedule around OFF times Having a realistic expectations of tasks Taking brain breaks Can exercise reduce ON times? Do endorphins have anything to do with OFF times?and more! We hope you enjoy!
For related resources, the video recording of this interview, and more visit: http://davisphinneyfoundation.org/podcast-recording-managing-motor-symptoms-during-off-times
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 04 Oct 2022 - 42min - 122 - Freezing of Gait, Postural Instability, and Exercise in Parkinson's
In this episode, Dr. Jay Alberts discusses:
The connection between cognition and freezing of gait What you can do to improve your cognitive and physical skills Music’s impact on walking and freezing of gait Deep brain stimulation The importance of managing postural instability and freezing of gait Assistive devices LSVT Big programming Dizziness and postural instability Festination of gait Laser canes & the importance of physical therapy Suggestions for a hunched back Strength training Retraining your brain to address freezing The "right" amount of exercise Causes of increased fall risk Boxing Stairs and freezing of gait Anxiety and freezing of gaitFor additional resources visit the accompanying blog post for this episode: http://davisphinneyfoundation.org/podcast-recording-freezing-of-gait-postural-instability-and-exercise-in-parkinsons
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 27 Sep 2022 - 58min - 121 - What Not to Say to a Person with Parkinson's
In this episode, Living with Parkinson’s Meetup (formerly the YOPD Council) panelists discuss:
Common hurtful phrases they hear from people without Parkinson’s including, “I know how you feel” and “everybody’s got something” The importance of “listening for the love” The fact that many hurtful comments come from the people we love and can often stem from misunderstanding How to use hurtful comments as a teaching moment Communicating to others that Parkinson’s doesn’t always have to be the topic of conversation Dealing with people who try to ascribe meaning to their Parkinson’s, who don’t understand the non-motor symptoms they struggle with, and who misinterpret going on disability Being asked to “stop shaking” during medical appointments When and how to share your Parkinson’s diagnosis with others How to explain the “inconsistencies” with Parkinson’s Their favorite things that people without Parkinson’s have saidVisit the accompanying blog post for this episode here: http://davisphinneyfoundation.org/podcast-recording-what-not-to-say-to-a-person-with-parkinsons
Tue, 20 Sep 2022 - 56min - 120 - The What and Why of Parkinson's Motor Symptoms and How to Manage Them
In this episode, movement disorder specialist, Dr. Suketu Khandhar discusses:
The neurological cause of motor symptoms Slowness of gut The subtypes of Parkinson’s Toe curling dystonia How to best prepare for your neurologist/movement disorder specialist visit The link between the severity of motor symptoms and non-motor symptoms The progression of motor symptoms Exercise to improve motor symptoms Supplements & Nutrition How to decrease fatigue How to treat double vision and visual-spatial issuesand more! We hope you enjoy!
For the video recording, mentioned resources, and more, visit: http://davisphinneyfoundation.org/podcast-recording-the-what-and-why-of-parkinsons-motor-symptoms-and-how-to-manage-them
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 13 Sep 2022 - 43min - 119 - A Conversation with Dave Iverson on Being a Caregiver for 10 Years
In this episode, author, filmmaker and producer, and retired broadcast journalist, Dave Iverson shares:
Why he chose to write the book Winter Stars about his journey as a caregiver rather than his own Parkinson’s diagnosis The roller coaster ride of navigating the emotional states that come along with caregiving The irrelevance of the truth and being right when dealing with caregiving Caregiving for a person with dementia What’s at the heart of being a caregiver The value of caregivers in our society Contending with grief throughout the process of caregiving Taking care of yourself as a caregiver The caregiving experience and its impact on your own concern for your future “Playing the scene you’re in”and more! We hope you enjoy!
For the video recording, mentioned resources, and more, visit: http://davisphinneyfoundation.org/podcast-recording-a-conversation-with-dave-iverson-on-being-a-full-time-caregiver-for-ten-years
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 06 Sep 2022 - 1h 02min - 118 - Managing the Role of Parkinson's Care Partner
In this episode, panelists Juwairiya Syed, Bud Rockhill, Barb Ankenman, Mary Gail Anderson, John Paul Lederach, and Angela Robb discuss:
Maintaining identity amidst caregiving The power of gratitude Communication with your person with Parkinson’s Being the care partner for a parent with Parkinson's Involving others in the care partner experience Not feeling selfish about setting boundaries Caring for someone with dementia Getting paperwork in order The balance between overstepping and understepping when it comes to decision making as a care partner Balancing caregiving with having children Full-time care facilitiesand more! We hope you enjoy!
For the video recording, mentioned resources, and more visit: http://davisphinneyfoundation.org/podcast-recording-managing-the-role-of-parkinsons-care-partner
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 30 Aug 2022 - 51min - 117 - Getting "Away" From Parkinson's
In this episode, panelists Soania Mathur, Wayne Gilbert, Robynn Moraites, and Sarah Zenner discuss:
The fact that there’s no such thing as getting “away” from Parkinson’s Finding the balance between focusing on your Parkinson’s to live well but not letting it define you Parkinson’s as a “simmering pot” Being intentional about how you choose to speak about your Parkinson’s Emotionally accepting your diagnosis The importance of creating relationships with other people with Parkinson’s The impact of connection on your health Living your best life now Getting engaged in your hobbies Using a mindful approach to managing your Parkinson’s symptoms Coping strategies when Parkinson’s is overwhelming Focusing on the most meaningful things in your lifeand more! We hope you enjoy!
Find the video recording, mentioned resources, and more at: http://davisphinneyfoundation.org/podcast-recording-getting-away-from-parkinsons
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 23 Aug 2022 - 40min - 116 - Urinary Dysfunction and Parkinson's
In this episode, Dr. Arun Mathur, a urologist with specialized knowledge of Parkinson's, discusses:
The differences in urinary dysfunction between different neurologic diseases An explanation of urinary dysfunction Urinary dysfunction as a potential precursor to Parkinson's Urinary dysfunction's impact on quality of life When you should seek treatment When urinary dysfunction occurs Non-pharmacological and surgical treatments DBS and urinary dysfunction Carbidopa/levodopa’s effect on urinary dysfunction Pharmacological treatments Catheterization Prostate symptoms versus Parkinson’s symptomsand more! We hope you enjoy!
For a video recording, related resources and more visit: http://davisphinneyfoundation.org/podcast-recording-urinary-dysfunction-and-parkinsons
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 16 Aug 2022 - 37min - 115 - Traveling with Parkinson's
In this episode, Living with Parkinson's panelists discuss:
Packing lists Airport tips, tricks, and suggestions The importance of taking your time Considering if travel is still right for you Traveling in different ways Traveling with kids Considerations, tips, and tricks for the airport and airplane Bladder control when traveling Constipation when traveling Medications while traveling Planning for the worst-case scenario Considerations when traveling to other countries The importance of continuing to exercise while traveling Connecting with others with Parkinson’s when travelingand more! We hope you enjoy!
For the all mentioned resources, a video recording, and additional resources on this topic, visit: http://davisphinneyfoundation.org/podcast-recording-traveling-with-parkinsons
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 09 Aug 2022 - 58min - 114 - How Can I Use Parkinson’s for Good? The Importance of Community and Mindset in Living Well with YOPD with Allan Cole
In this episode, Allan Cole, a professor and published author in social work and counseling, and a person living with young onset Parkinson's discusses:
The importance in sharing your story We is stronger than I The beginning of Allan’s Story The choice of when to disclose your diagnosis Distinguishing between illness and disease The importance of focusing on the present moment Remembering that you do have agency Misperceptions about Parkinson’s The importance of consultations with the experts Life can still be good with Parkinson’s Getting involved in the Parkinson’s community Mindset and “Meaning Making” Who am I and who do I want to be? How do I maintain hope and how can I use Parkinson’s for good? Focus on your present self and abilities Embrace your spiritual life, whatever that looks like for you “Exercising Hope”and more! We hope you enjoy!
For more information on this episode including mentioned links, the video recording, and more, go to: http://davisphinneyfoundation.org/podcast-recording-how-can-i-use-parkinsons-for-good-the-importance-of-community-and-mindset-in-living-well-with-yopd-with-allan-cole
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 02 Aug 2022 - 39min - 113 - For Care Partners: Managing Your Own Mental Health and Well-Being
In this episode, social worker Jessica Shurer, discusses:
What self-care for care partners actually means The complexities of mental health for Parkinson's care partners including anticipatory grief and high levels of unpredictability The shift in identity when becoming a care partner The influence of negative self talk Understanding the signs of depression, anxiety, and caregiver burden The importance of self awareness to understand when you're experiencing mental health difficulties and what you need to improve them Finding ways to manage your stress The importance of connecting with others Seeking professional help Empathy versus sympathy The importance of self advocacy in improving your mental healthand more! We hope you enjoy!
Learn more at http://davisphinneyfoundation.org/podcast-recording-for-care-partners-managing-your-own-mental-health-and-well-being
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 26 Jul 2022 - 43min - 112 - Managing Depression and Anxiety with Greg Pontone
In this episode, Dr. Gregory Pontone discusses:
What mental health, wellness, and well-being really mean Understanding the definition of mental illness and not over-pathologizing The circular effect of caring for your mind and body The most common mental health issues related to Parkinson's: depression and anxiety Identifying symptoms of depression and/or anxiety in yourself or a loved one Why people with Parkinson's experience depression The importance of utilizing multiple pharmacological and non-pharmacological treatments simultaneously Anxiety and depression during OFF times Strategies to manage anxiety in the moment Utilizing telemedicine services Medications for anxiety and those to be cautious of Anxiety's impact on motor symptoms Involving family and friends in your treatment CBD as a treatment for anxiety and depression The importance of exercise in improving mental health Apathy and how to manage itand more! We hope you enjoy!
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 19 Jul 2022 - 59min - 111 - Think Like a Dancer to Live Well with Parkinson's
In this episode, David Leventhal, a program director and founding teacher of Dance for PD, a dance program for people with Parkinson's, talks to us about how the elements of dance translate to living well with Parkinson's.
Contact us anytime at blog@dpf.org
Find all the links, resources, and additional materials mentioned during today's episode on our Parkinson's Podcast Blog: http://davisphinneyfoundation.org/podcast-recording-think-like-a-dancer
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 12 Jul 2022 - 22min - 110 - Pain in Parkinson's
In this episode, Dr. Jori Fleisher discusses a very prevalent but rarely talked about symptom of Parkinson's, pain. Dr. Fleisher discusses how pain is detected in the body, the types of pain experienced by the body, and how you can manage pain in Parkinson's.
Contact us anytime at blog@dpf.org
Find all the links, resources, and additional materials mentioned during today's episode on our Parkinson's Podcast Blog: http://davisphinneyfoundation.org/podcast-recording-pain-in-parkinsons
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 05 Jul 2022 - 44min - 109 - Autonomic Dysfunction in Parkinson's
In this episode, Dr. Lucy Norcliffe-Kaufmann, an expert in autonomic dysfunction in Parkinson's speaks to the numerous aspects of Parkinson's symptoms of the autonomic system, including an inability to sweat, dry eyes, constipation, sexual dysfunction, issues in blood pressure, drooling, and more. She explains why these symptoms occur and what you can do to manage them to live better with Parkinson's.
Contact us anytime at blog@dpf.org
Find all the links, resources, and additional materials mentioned during today's episode on our Parkinson's Podcast Blog: http://davisphinneyfoundation.org/podcast-recording-autonomic-dysfunction
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 28 Jun 2022 - 43min - 108 - Medical Myths and Parkinson's
In this episode, we talk to Dr. Benzi Kluger about many of the myths you may have read regarding Parkinson’s, the proliferation of medical bullsh*t (BS) that’s growing by the minute, and important clues to look out for when it’s time to evaluate the merits of a Parkinson’s article, product, treatment, or cure.
For related resources for this episode visit: http://davisphinneyfoundation/podcast-recording-myths-and-parkinsons
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 21 Jun 2022 - 59min - 107 - Men and Parkinson's
In this episode, Allan Cole, Danny Bega, Michael S. Fitts, Arun Mather, and Kent Toland discuss:
Common concerns and challenges “Plumbing” issues Erectile dysfunction Medication strategies ON times vs. OFF times Reconciling self-image Professional transitions, accommodations, and career modificationsand more! We hope you enjoy!
For related resources visit: http://davisphinneyfoundation.org/podcast-recording-men-and-parkinsons
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This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 14 Jun 2022 - 56min - 106 - Women and Parkinson's
In this episode, Kat Hill, Karen Jaffe, Soania Mathur, and Nabila Dahodwala discuss:
Hormonal life stages and Parkinson’s (including premenstrual, pregnancy, and pre-or post-menopausal) Hormone therapies (particularly estrogen and progesterone) and Parkinson’s Motor and non-motor symptoms in women with Parkinson’s Psychosocial and mental health issues in women with Parkinson’s Relationships and social roles for women with Parkinson’s Care team considerations and communicationFor related resources go to: http://davisphinneyfoundation.org/podcast-recording-women-and-parkinsons
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 07 Jun 2022 - 55min - 105 - Neuroplasticity, Exercise, and Parkinson's
In this episode, we sat down with Mike Studer to talk about neuroplasticity, exercise, sleep, and how important they are to living well with Parkinson’s.
Find related resources here: http://davisphinneyfoundation.org/podcast-recording-neuroplasticity-exercise-and-parkinsons
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 31 May 2022 - 51min - 104 - The Embarrassing Side of Parkinson's
In the following episode, Kat Hill and Kevin Kwok discuss how the symptoms of Parkinson's can be embarrassing, especially the ones that others can't see, and how they have handled feelings of shame or embarrassment surrounding these symptoms.
For related resources mentioned in this episode and for more information on living well, visit: http://davisphinneyfoundation/podcast-recording-the-embarrassing-side-of-parkinsons
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 24 May 2022 - 22min - 103 - Ending Parkinson's and Living Well Now with Bas Bloem
In the following interview, we have a conversation with Dr. Bloem about the book, Ending Parkinson's, about living well with Parkinson’s today, about the hopes for Parkinson’s in the future and much more.
For more information and related resources go to: http://davisphinneyfoundation.org/podcast-recording-ending-parkinsons-living-well-today
Visit www.dpf.org to discover more of what the Davis Phinney Foundation is doing today to help you LIVE WELL with Parkinson's.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 17 May 2022 - 35min - 102 - New and Emerging Therapies for Parkinson's in 2022
In this episode, Dr. Michael Okun shares the latest in 2022 for new and emerging therapies for Parkinson’s.
For more information and related resources go to: http://davisphinneyfoundation.org/podcast-recording-new-treatments-and-therapies-parkinson's
Visit www.dpf.org to discover more of what the Davis Phinney Foundation is doing today to help you LIVE WELL with Parkinson's.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 10 May 2022 - 58min - 101 - Building Stronger Relationships Through Communication
In this episode, panelists Pete Huley, Christa Ingle, Pat Donahoo, and Cidney Donahoo talk about how important effective communication has been in their journey with Parkinson's and the wisdom they've learned.
For more information and related resources go to: http://davisphinneyfoundation.org/podcast-recording-building-stronger-relationships-through-communication
Visit dpf.org to discover more of what the Davis Phinney Foundation is doing today to help you LIVE WELL with Parkinson's.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 03 May 2022 - 29min - 100 - Living Well Today and Detecting Medical Bullshit: Chapter 16 and Appendix of the Every Victory Counts Manual
Listen to chapter 16, “Living Well Today,” and the Appendix, "Detecting Medical Bullshit" of the newest edition of our Every Victory Counts® manual. Living well with Parkinson’s is a choice and a constant effort, but as many people in our community would say, the effort is worth the result. And an important part of living well with Parkinson's is being able to decipher fact from fiction in the Parkinson's world. While there are many emerging therapies and treatments for Parkinson’s, there are also, unfortunately, many unsupported claims and “false” treatments out there as well. In these last two sections of the Every Victory Counts Manual, you’ll get advice on steps you can take right away to begin living well with Parkinson’s, and you'll learn how to vet the Parkinson’s research and stories you hear.
Go to https://davisphinneyfoundation.org/podcast-recording-chapter-sixteen-and-appendix-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.
Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 26 Apr 2022 - 31min - 99 - Long-Term Care and Financial Planning: Chapter 15 of the Every Victory Counts Manual
Listen to chapter 15, “Long-Term Care and Financial Planning,” of the newest edition of our Every Victory Counts® manual. This chapter will break down the what, how, and when of long-term care and financial planning and provide you with resources so you feel confident planning for the future.
Go to https://davisphinneyfoundation.org/podcast-recording-chapter-fifteen-every-victory-counts-manualfor related resources and to order your Every Victory Counts manual today.
Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 19 Apr 2022 - 41min - 98 - General Health and Wellness: Chapter 14 of the Every Victory Counts Manual
Listen to chapter 14, “General Health and Wellness,” of the newest edition of our Every Victory Counts® manual. In this chapter you will learn general health and wellness information to remember as you navigate your Parkinson’s, such as the importance of regular dental, vision, and skin screenings. It also explains how Parkinson’s may impact your vision, oral health, and skin, and how to ensure you stay on top of your preventative care routines.
Go to https://davisphinneyfoundation.org/podcast-recording-chapter-fourteen-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.
Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 12 Apr 2022 - 35min - 97 - Social Connections, Relationships, and Community: Chapter 13 of the Every Victory Counts Manual
Listen to chapter 13, “Social Connections, Relationships, and Community,” of the newest edition of our Every Victory Counts® manual. In this chapter you will discover how social connections, relationships, and community can be just as important as the medications you take, as well as how to nurture those relationships while managing the complexities of Parkinson’s.
Go to https://davisphinneyfoundation.org/podcast-recording-chapter-thirteen-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.
Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 05 Apr 2022 - 49min - 96 - Emotional Health: Chapter 12 of the Every Victory Counts Manual
Listen to chapter 12, “Emotional Health,” of the newest edition of our Every Victory Counts® manual. This chapter discusses the mind-body connection, how to improve your emotional health through volunteerism, mindfulness, and connection, and other strategies to manage your emotional health and overall well-being.
Go to https://davisphinneyfoundation.org/podcast-recording-chapter-twelve-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.
Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 29 Mar 2022 - 50min - 95 - Nutrition: Chapter 11 of the Every Victory Counts Manual
Listen to chapter 11, “Nutrition,” of the newest edition of our Every Victory Counts® manual. This chapter will teach you what you need to know about nutrition and Parkinson’s, as well as provide you tools to decide which nutritional choices are best for you.
Go to https://davisphinneyfoundation.org/podcast-recording-chapter-eleven-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.
Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 22 Mar 2022 - 34min - 94 - Complementary Therapies: Chapter 10 of the Every Victory Counts Manual
Listen to chapter 10, “Complementary Therapies,” of the newest edition of our Every Victory Counts® manual. Living well with Parkinson’s requires a multi-dimensional approach, and while conventional medicine for the symptoms of Parkinson’s has come a long way, there are now more options than ever to live well with Parkinson’s. In this chapter, learn about many of the complementary therapies available and how they can help you live well with Parkinson’s.
Go to https://davisphinneyfoundation.org/podcast-recording-chapter-ten-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.
Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 15 Mar 2022 - 42min - 93 - Exercise: Chapter 9 of the Every Victory Counts Manual
Listen to chapter nine, “Exercise,” of the newest edition of our Every Victory Counts® manual. This chapter will review the importance of exercise in Parkinson’s, the type and intensity of exercise that might work for you, and how to create and stick to an exercise routine.
Go to https://davisphinneyfoundation.org/podcast-recording-chapter-nine-every-counts-manual for related resources and to order your Every Victory Counts manual today.
Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 08 Mar 2022 - 48min - 92 - Surgical Therapies: Chapter 8 of the Every Victory Counts Manual
Listen to chapter eight, “Surgical Therapies,” of the newest edition of our Every Victory Counts® manual. As Parkinson’s symptoms progress, surgical therapies may be considered to help manage symptoms and improve quality of life. This chapter gives an overview of the current surgical therapies available, when an appropriate time may be to receive such therapies, and other important information to consider.
Go to https://davisphinneyfoundation.org/podcast-recording-chapter-eight-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.
Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 01 Mar 2022 - 27min - 91 - Medication: Chapter 7 of the Every Victory Counts Manual 6th Edition
Listen to chapter seven, “Medication,” of the newest edition of our Every Victory Counts® manual. Medications for managing your Parkinson’s should always be discussed with your neurologist or movement disorder specialist, but this chapter will give you an in-depth look at the many medication options available to you for various symptoms, as well medication side effects and interactions to be aware of.
Go to https://davisphinneyfoundation.org/podcast-recording-chapter-seven-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.
Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 22 Feb 2022 - 36min - 90 - Autonomic Non-Motor Symptoms of Parkinson's: Chapter 6 of the Every Victory Counts Manual 6th Edition
Listen to chapter six, “Autonomic Non-Motor Symptoms,” of the newest edition of our Every Victory Counts® manual. This chapter looks at the symptoms of Parkinson’s that relate to autonomic systems of the body, as well as strategies to manage them. These symptoms include things like drooling, constipation, pain, sweating, and fatigue, along with others. Remember that symptoms show up differently for every person with Parkinson’s, and the symptoms that will be discussed may or may not be present for you.
Go to https://davisphinneyfoundation.org/podcast-recording-chapter-six-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.
Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 15 Feb 2022 - 1h 05min - 89 - Cognitive Non-Motor Symptoms of Parkinson's: Chapter 5 of the Every Victory Counts Manual 6th Edition
Listen to chapter five, “Cognitive Non-Motor Symptoms,” of the newest edition of our Every Victory Counts® manual. This chapter explores the cognitive symptoms that might be associated with Parkinson’s, such as difficulties in speech, comprehension, and memory. It also includes in-depth information about Parkinson’s disease psychosis (hallucinations and delusions) and impulse control disorders. Go to https://davisphinneyfoundation.org/podcast-recording-chapter-five-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.
Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.
Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 08 Feb 2022 - 40min - 88 - Emotional Non-Motor Symptoms of Parkinson's: Chapter 4 of the Every Victory Counts manual 6th ed.
Listen to chapter four, “Non-Motor Symptoms (Emotional),” of the newest edition of our Every Victory Counts® manual. This chapter dives into the emotional symptoms you might experience with Parkinson’s, such as depression, anxiety, or apathy, as well as strategies and treatments to manage them.
Go to https://davisphinneyfoundation.org/podcast-recording-chapter-four-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.
Email blog@dpf.org for any questions, comments, concerns, and to participate in the competition related to this series.
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 01 Feb 2022 - 27min - 87 - Motor Symptoms: Chapter 3 of the Every Victory Counts manual 6th ed.
Listen to the third chapter, "Motor Symptoms," of the newest edition of our Every Victory Counts® manual. This chapter explains the common motor symptoms of Parkinson’s as well as strategies to manage them. Go to https://davisphinneyfoundation.org/podcast-recording-chapter-three-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today.
Email blog@dpf.org with any questions, comments, or concerns and to participate in the competition related to this series.
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 25 Jan 2022 - 39min - 86 - Parkinson's 101: Chapter 2 of the Every Victory Counts manual 6th ed.
Listen to the second chapter, "Parkinson's 101" of the newest edition of our Every Victory Counts® Manual, 6th Edition. This chapter gives a brief overview of the most common questions of Parkinson's such as... What is Parkinson's? Who gets Parkinson's? What are the treatment options for Parkinson's? And many many more. Email blog@dpf.org to participate in the competition related to this series.
Go to https://davisphinneyfoundation.org/podcast-recording-chapter-2-parkinsons-101-from-the-every-victory-counts-manual-6th-edition for related resources and to order your Every Victory Counts manual today.
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 18 Jan 2022 - 37min - 85 - You Have Parkinson's, Now What? Chapter 1 of the Every Victory Counts manual 6th ed.
This is chapter one of the Every Victory Counts® Manual, 6th edition entitled "You Have Parkinson's, Now What?" Receiving a Parkinson's diagnosis can be overwhelming and an emotional roller coaster. This chapter begins to address the top things you need to know about your Parkinson's diagnosis to begin to move from shock, awe, and fear, to having the confidence in knowing you can live well with this diagnosis.
Email blog@dpf.org to participate in the competition related to this series.
Go to https://davisphinneyfoundation.org/podcast-recording-chapter-one-the-every-victory-counts-manual-6th-edition for related resources and to order your Every Victory Counts manual today.
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 11 Jan 2022 - 22min - 84 - Foreword and Introduction: The Every Victory Counts Manual 6th Edition
Listen to the introduction of the Every Victory Counts manual 6th edition, featuring a foreword by Bas Bloem, an explanation of how to use this manual and inspiration to live well today with Parkinson's.
Go to https://davisphinneyfoundation.org/podcast-recording-introduction-the-every-victory-counts-manual-6th-edition for the show notes and additional resources for today's episode.
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 04 Jan 2022 - 19min - 83 - Introducing the Every Victory Counts Manual 6th Edition
Listen to hear what's coming next for the Podcast in 2022!
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Sat, 01 Jan 2022 - 02min - 82 - A Story of Hope and Inspiration
Linda Olson, a triple amputee, person with Parkinson's, author, and motivational speaker shares her story of the challenges she's overcome and how she continues to live well each and every day through optimism, hope, and perseverance.
For additional information and resources go to:
https://davisphinneyfoundation.org/podcast-recording-story-inspiration-hope
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 21 Dec 2021 - 30min - 81 - Medications For Non-Motor Symptoms
The non-motor symptoms of Parkinson's are vast and vary greatly from person to person, which means that treatment options are expansive as well.
In this episode, Dr. Aaron Hang gives a short overview of the most common non-motor symptoms and the primary medical and non-pharmacological options to treat them.
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Tue, 07 Dec 2021 - 57min - 80 - Non-Motor Symptoms Part 2: YOPD Council
In this episode, The YOPD Council discusses depression, anxiety, and how to cope with "dark" days as a follow up to a conversation they had last month on Non-Motor Symptoms.
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Wed, 01 Dec 2021 - 50min - 79 - Formularies
When a drug is added or removed from a formulary list, your insurance's coverage of the medication may change. In this interview with Derek Arnold, he explains what formularies are, how they work, and what you can do when your medication is no longer covered.
For more information about formularies and resources related to this episode, go to: https://davisphinneyfoundation.org/podcast-recording-what-you-need-to-know-about-formularies
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Mon, 08 Nov 2021 - 14min - 78 - Non-Motor Symptoms
In this episode, The YOPD Council discusses their experience with the unseen non-motor symptoms of Parkinson's.
For show notes, resources, and to sign up for the YOPD Council live, go to: https://davisphinneyfoundation.org/podcast-recording-yopd-council-non-motor-symptoms
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Mon, 01 Nov 2021 - 1h 01min - 77 - The Latest Advancements in Deep Brain Stimulation for Parkinson's
Deep brain stimulation (DBS) is a highly effective and reasonably safe treatment for Parkinson’s; however, it’s also frequently misunderstood. The success stories about how people are sometimes living symptom and medication-free as a result of getting DBS understandably lead many to want to get the treatment as soon as possible. Others think it sounds scary and shy away from it. During this webinar, Dr. Joohi Jimenez-Shahed broke down the what, why, and how of DBS and its latest advancements.
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Sun, 24 Oct 2021 - 59min
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